I had POEM for alchalasia

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Since then I have chest pain and keep regurgitating especially water. This keeps me up at night. I also have Sjogren's and Hasimotos thyroiditis. This ruined my life. I can't eat out, feel sick all the time and fatigue is terrible. Does anyone feel like this!

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  • Posted

    I am sorry to hear about your trouble. It does need a specialist to be able to separate out what symptoms might be caused by which condition. Achalasia is rare, and it must be even rarer to have this combination of illnesses.

    When you are in bed at night it might be the case that because you are horizontal there is more of a problem of stomach contents refluxing up, perhaps. It might be worth trying to sleep propped up, or raising the head of the bed?

    There may be some medication that might be able to help with your feeling of nausea.

    It might be worth having a test of your nutrition / mineral / vitamins levels that might possible contribute to fatigue. If you have supplements, these might be better in liquid form perhaps?

    I am sorry not to be able to help more. Your specialist medical team may know of other patients wit your conditions? But let's hope that somebody else with them may see your post.

  • Posted

    You have several autoimmune disorders. Hashimoto's and Sjogren's are both autoimmune diseases which are known to cause extreme fatigue. I would speak to your doctor about adjusting your medications.

    I am currently debating whether to have the POEM surgery. Currently, I have found sleeping on pillows which keep me in an upright position help along with withholding food and fluids after 4:00 pm.

    I also take Isosorbide Dinitrate 5 mgs. every 3 hours as needed for esophageal spasms. This makes me nauseous, so then I follow with a script for nausea which makes me very tired. I have 3 different strengths. I am trying to take my time eating and drinking. I also make my own smoothies in an attempt to get the most out of what stays down.

    You are not alone in feeling fatigued or feeling distressed because you can't go out to eat like a "normal" person. It isn't easy having an autoimmune disorder. If you have not yet read "The Spoon Theory," by

    Christine Miserandino I would suggest goggling it. It expresses how she struggled with her autoimmune disorder.

    Best wishes.

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