I had uterine fibroid embolisation on Tuesday. Today (Friday) I'm still in severe pain.
Posted , 9 users are following.
Can anyone tell me if this is normal? I thought the pain would reduce each day but it's as bad today as it was on Tuesday. I'd appreciate hearing others experiences.
1 like, 24 replies
millie99 aileen23193
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Hi
Don't know if it is normal but I had severe groin pain for around a week.I also had a cramping pain on and off for a couple of weeks.I am fine now,
aileen23193 millie99
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Good to hear that you're fine now. I've been worried that I'm going through all this pain and it might not make any difference. Thanks for replying.
heather34376 millie99
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millie99 heather34376
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The largerst I think was 9cm,I was told I had over 20.I am waiting for a appointment to see my gyne for results,I had a ultresound two weeks ago.I have not had any bleeding but my periods had stopped in May.I was told it could take up to 18 months for me to see any difference.My stomach is massive and feel really low because of it.
heather34376 millie99
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Hi Millie, Wow 20 that's a whole uterous full, with sizes like 9cm you poor thing. I really hope that all the pain has been an especially good thing with them dying off. God bless you. Let me know how you get on. I only have one (I think) 12x13. I have UFE late November. I'm a bit anxious but feel dreadful with pain here & there. I'm 46 & haven't had periods for a while being on the Esmya & Zoladex. I'm worried about infection & complication of infection. But I have to do somrthing. Back hurts, bloated, sciatic pains & when I have them heavy periods. My consultants secreatary told me that the main reductions were in the first year but some ladies keep getting reductions in year 3. Those who are still bothered after ufe with whats left are sometimes offered a d & c.
Today I'm tired & fed up, so I appreciate why you might feel low. Lets try to be positive & in your case lets hope that the ufe that you have had, is reducing the fibroids even if if is slowly. My consultant said infection is rarer after 2 weeks post ufe so hopefully you are out of the woods for that & thats a positive. Keep in touch x
millie99 heather34376
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Thank you for your kind words.I hope I will sse them go.I am very tired and have lower back pain.Trying not to take any pain killers but may have to soon.
I went to the doctors three days after I had my surgery and she said the wound had healed and the cut they made was very small.
Please let me know how you get on.x
crzy8 aileen23193
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I stopped taking the percocet the day after I got home ended up being allergic. I took ibuprofen around the clock the first 5 days then stopped.The pain was mostly pressure. I made sure I got up and around right away I would be sore but it really does help. Give yourself like 2-3 weeks and the discomfort should be gone completely, mine was gone after 2.
Make sure you're taking stool softeners regardless. The hardest part for me was eating. it's been a month and I can finally kind of eat a full meal.
you will be happy with the results I hope bet decision I made.
aileen23193 crzy8
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Thanks for your reply, it's good to know that your pain is gone now and that you're happy with your decision - I've been doubting whether I've done the right thing or not. I'm the same as you with eating - I'm really struggling to eat and feeling quite nauseous a lot of the time. I also haven't had a bowel movement since before the UFE, thinking that I might need to go to the chemist to get something for that tomorrow.
anne05147 aileen23193
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don't take a laxative, ask your pharmacists advice. I did and he warned me off any laxatives and recommended a stool softener.
aileen23193 anne05147
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Thanks for your advice, I'll get a stool softener today.
heather34376 anne05147
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heather34376 crzy8
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Can I please ask what size were your fibroids? Did you get a good reduction in size & symptoms?
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anne05147 aileen23193
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much gentler on your bowels
UFE27 aileen23193
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aileen23193 UFE27
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Thanks for sharing, the pain seems to be subsiding slightly today. I don't feel constipated so guess I ever thought that some of the pain could be coming from that but it makes sense that it might be. I'll start taking a stool softener today.
heather34376 aileen23193
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heather34376 UFE27
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UFE27 heather34376
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aileen23193 heather34376
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I don't know exactly how many fibroids I have, just that there are multiple fibroids and that the biggest is the size of a grapefruit (7cm diameter).
heather34376 UFE27
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i too have read much, I believe results are often better for those with average smaller ones. I believe I have 1. 13x12cm & my consultants secretary said at best I can expect is 6cm, which is bigger than alot at the start. But I'm hopeful that even though at best I'll be left with a 6cm mass of scar tissue that my symptoms will relieve & I can avoid a hysterectomy. Myomectomy is not a viable option for me, so my consultants all say. Here's to hoping & putting my faith in prayer that it will eventually reduce. I have had a sizeable fibroid since before my son was conceived 10 years ago, which they told me they couldnt see on C Section but must have just been stretched in the uterine wall, as its certainly still here & don't I know it.
heather34376 aileen23193
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I am getting a bit concerned that most people having UFE have 6/7cm or less. With a 12x13 cm one, if UFE works for me I'll be left with 6cm at very best. I hope thats enough to stop my back pain & sort out the other side effects & prevent a hysterectomy.
UFE27 heather34376
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I had an ultrasound yesterday and they stated that I have not got a fibroid in the fundus of my uterus (top section), I have an ultrasound from a private hospital and another report from my MRI scan that disproves otherwise, sometimes they simply do not see all the fibroids.
heather34376, I hope your fibroid reduces to your satisfaction and at least you medical professionals were realistic with you and quoted a 50% expected reduction. My consultant at the London Clinic seemed confident in the progress of UFE in the last few years, so in time I will see if he was right. I too did not want an open myomectomy, purely because I didn't want the surgery and the scarring but the long wait for results from UFE is annoying but something I have no choice but to exert patience.
heather34376 UFE27
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