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I have suffered from RLS since I was 12 years old and now 62 years later the disease has only worsen.
I just heard of the forum today and it gives me comfort to know there are others we are experencing the same feelings as I am. I was referred to a neurologist approximately 20 years ago and now I have recently been advised that they are unable to control by legs with their prescribed parkinson medication and will be referring me to the pain clinic.
I have tried so many variables of drugs withh the latest being the Neupro patch-started at 4 mg, then it was increased to 8 mg every 24 hours. The drug is relatively new in Canada. My legs some nights are so bad that I have tken up to 16 mgs at one time. Unfortunately the drug no longer impacts my rls.
I am at my wits end now as my body is no longer responding to the prescribed drugs and now I feel I am left alone to self medicate my self until I finally get some relief from these horrible leg sensations.
People always assosciate RLS with pain but it is not pain- I find it difficult to decribe the sensation I feel-can anyone share their thoughts.
Just recently I have been approved for legal marijuana.
It has been 5 nights since I had a good nights sleep and feeling somewhat depressed.
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