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I am a 57 year old woman (through menopause - last period 7/2014). On 4/5/2010 I woke up with a migraine. I'd had them on and off for about 25 years but they never lasted more than 3 days or so. Unfortunately, I've still got that 4/5/2010 headache. It changes location and early on the severity ranged from a 6 to a 10. They are now only a 9 or 10 on the pain scale. I have had every test run and tried every medication. I have been to UCLA Medical Center and the Diamond Headache Clinic in Chicago (for a week). I've had pain blocks, epidurals, tens units etc. I live on Dilaudid (56mg a day). We are currently testing for the right pain med to use in an implanted pain pump. I had to quit work 5 years before my retirement date. I would have had 30 years in working for the state of Calif. I had a problem after I had a spinal tap because apparently I was supposed to be told to go home and lay flat (not even a pillow) for days. Because I didn't, the puncture didn't heal and I leaked spinal fluid. That was not the cause of the migraines, the tap was done during the diagnosis process for the migraines. The only thing that helps a tiny bit is botox from my headache specialist. All it does is make the pain meds work a little bit better. Please if you know of anything that helps, let me know.
I forgot to mention, I don't sleep either. On average I sleep 2 to 3 nights a week. I often go 3 nights in a row without sleeping (and I don't sleep during the day ) even though I spend my life in bed. I'm afraid to say I've reached the point that should I sleep I would simply rather not wake up (but I couldn't do that to my husband or family).
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