I have a fibro flare sleeping inly 3 hours with a 20 month old help

Posted , 5 users are following.

Is any one else in my boat? I have a 20 month old daughter ive had fibro pretty much under control through pregnancy. I had some bad sleep issues for two years but of late its gotten worse and had an awful flare since thursday. Ive been up since 3am after sleeping around 12.30. Im worried as i have no family or friends and no support. Is anyone in same boat or can anyone help me. I force myself to go out for my little one. She keeps me going. But this flare is really making things tough and im becoming depressed. I saw a go who gave me naproxen and said go back in amitriptyline. Im in need of support more than anything. Someone yo talk too or someone who knows how i feel sad

1 like, 5 replies

5 Replies

  • Posted

    Il just add im a single mum with no family and no friends as only lived in my area a year
  • Posted

    I know how you feel with the flare up I have been the same lately what area do you live in can u not find a support group in your area hope you can find something take care of yourselfgentle hugs x
  • Posted

    Hi Melissa02192 Is their a fibro support group in your are or a mums toddler group you could join. You could have a chat to your gp or health visitor and ask what help support their is out their for you. Its hard trying to cope with a little one fibro and no sleep.I know its not the same as having some one to talk to face to face but you have us on the forum to talk too.Its hard trying to get decent sleep with fibro I know as had problems with it too, take care gentle hug 
  • Posted

    Hi Melissa I can relate to this and empathise with you I was diagnosed with fibro and chron's over 20 years ago I was also became a single mother with 3 young children and no family or friends to help although my daughter was brilliant with her 2 younger brothers so when I didn't sleep at night I could get some rest through the day...I had a lot of pain in my lower back and hip.i was alone and suffered with depression..there wasn't any medication available then i just had pain killers co codamol and paracetamol whenever I got a really bad flare up I would get  a heat pad you can put in the microwave and sit or lay down with it on the affected area it would take up to 3 days to get some relief..with you having a baby it's essential you to try and sleep when she does easily said than done I know...what I have learnt over the years is it's important to maintain as active and healthy as is possible.. being a single parent is tough and it will seem a struggle now but it will get better for you when your daughter can go to school then you may be able to find a college course or part time work with fibro I have learnt pacing yourself in things you do and keeping stress  free is essential to your health doing what you can when you can will minimise flare ups and being in the house 24/7 is not good for you just getting some fresh air taking your daughter for a walk or to the park is good for you... have you looked into a mother and toddler group in your area...also some foods can trigger a flare up with me its spicy foods cheese and mushrooms trigger mine so have a look at your diet...I can honestly say Melissa it can get better gps can only do so much the rest is up to us over the years I have worked part time then I couldn't work I went to college I did a course on one of my interests interior design I had a brilliant tutor that understood if I wasn't well enough to attend I could do coursework at home or she would send work to me...I joined an aqua fit class and gym with a schedule suitable to my needs twice a week when the kids were at school I believe this has helped my health improve over the years as I haven't suffered with as much pain for 10 years I stopped taking strong pain killers I now only take paracetamol when my temperature rises I have codeine for when I get the odd flare up I have read on here that some medications can have adverse side effects and there are many people that can't tolerate them  I am now 58  keeping as active as I can and enjoying my 3 year old granddaughter I see her once a month I love playing with her she makes me feel so energetic and happy...

    I wish you well take care are of yourself and enjoy being with your daughter you are starting out on a journey I hope everything works out well for you.

    Shirl x 

  • Posted

    Hi Melissa I'm Zoe. 40 yrs old with a 6 yr old. I was diagnosed at 27.

    I remember how I felt from her birth onwards. Things have settled now. I did it by myself and many times I felt I was going to pass out.

    I get it. It's hard. Do u have any help. A partner or family member to help?

    What medicine did u take before and after ur lovely little baby?

    I had to come off some as they were too risky being pregnant and breastfeeding.

    I sympathise with how ur feeling. It is v hard.

    Do u have anything stressing u out and stopping ur mind from resting?

    I had to keep reminding myself that this was a phase not sleeping and that it would change?

    There is a medicine called Dosulepin. It is normally prescribed for treating depression.

    But it also desensitise parts of Fibro.

    I have both ME and Fibro and I have to say it changed my sleep for the better. We do have to take a higher dosage than when it's treated for depression. I had to start low and then increase it slowly until it help me to fall asleep. I never would take anything that stops me hearing and reacting to my daughter. That would not happen. But that's what u liase wirh ur Dr about finding the right dosage for u.

    It really changed my ability to fall asleep and get back off to sleep too.

    I take 225 mg of Dosulepin at night.

    I hope u get the help u need but we are also here for u on this site.

    Good luck Melissa

    From Zoe.

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