I have a large pelvic mass (cyst/tumor)!

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I’m 27 years old. I decided to visit my gynecologist after bleeding/spotting for almost two months, along with other symptoms such as large bloated stomach, lower abdomen pain, and back pain. My gynecologist was concerned after he couldn’t feel my uterus, so sent me to have a transvaginal ultrasound and an abdominal ultrasound. The results from that were that there is a large pelvic mass stemming from my left ovary. I was sent for a MRI the following day along with blood work. My results from the MRI and blood work confirmed the ultrasound. I have a large pelvic mass that is about 30 cm in diameter stemming from my left ovary. The mass is also pressing against my uterers but isn’t causing any trouble for me right now. My CA125 is slightly elevated which my doctor said could be due to the mass but they do not want to rule ovarian cancer out just yet until the mass is removed an a biopsy is done. I am meeting with a gynecological oncologist tomorrow to discuss what procedure/surgery to proceed with. 

I’m extremely nervous about surgery and have no idea what to expect. I’d really like to know others experiences. 

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  • Posted

    Hi Pamela 

    I can't really tell you much about surgery as I'm still waiting for mine but I can empathise with you! I found out a couple of month ago  I have some large dermoid cysts that need removing, it really threw me & I was really worried at first, obviously I still have my concerns but I'm going for my pre op today & should be having my op on Friday.

    I'm in a much better place now I've got my head round it all it's a lot to take in when you hear try to keep calm & not focus on it all too much ( very easy to say I know!) but I did have a bit of a meltdown at first & can understand how you're feeling

    Hope this helps..... I've found this site very helpful & didn't realise how many people are going through this all the time 

    Keep me updated x

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    • Posted

      Amber, after meeting with gynecological oncology team today, my surgery is set for next Tuesday! It will have to be open surgery due to the size so I am nervous about that but thankful that they are able to move quickly with this.

      How large is your cyst and what kind of surgery has been decided for you?

      Sending good vibes! I hope your pre op went well!

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    • Posted

      That's great news! Will be really good to get it sorted so soon :-) 

      ...& thank you that's very kind x

      I have 3 dermoid cysts the largest is 8.7 cms I could have have them removed last month but we were going on holiday & my consultant said it would be best to do my op afterwards which was great & gave me time to go get my head around it all, I must admit though I just want it all done now so I'm really pleased they're getti g you in soon so you can get answers & start your recovery! 

      They won't know wether they're doing keyhole or open until they 'go in'! but I'm preparing for open as worse case scenario if that makes sense!? 

      Hope you're feeling ok & ready for eat week I know it must have al come as a shock! 

      xx

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  • Posted

    Hi Pam,

    That's an extremely large mass. Again, it seems doctors just aren't trained to deal with ovarian cysts with more urgency.

    Have you had a chance to read the ultrasound report? Does it mention if it's solid mass or fluid filled?

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    • Posted

      I haven't looked at the ultrasound or MRI reports yet but my gynecologist did say that there is some fluid inside the mass. The ultrasound tech kept asking me if I emptied my bladder during it, so yes there must be some sort of fluid.

      Thankfully after meeting with the gynecological oncology team today, my surgery is schedule for next Tuesday. I am thankful that this is moving along quickly.

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    • Posted

      I haven't looked at the ultrasound or MRI reports yet but my gynecologist did say that there is some fluid inside the mass. The ultrasound tech kept asking me if I emptied my bladder during it, so yes there must be some sort of fluid.

      Thankfully after meeting with the gynecological oncology team today, my surgery is schedule for next Tuesday. I am thankful that this is moving along quickly.

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