I have a mystery condition

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Three months ago I started to feel dizzy around mid morning. I have a number of conditions including Glaucoma,Diabetes,Sick Sinus Syndrome,Hiatus Hernia, Polymialgia Rheumatica Oh,and an enlarged Prostate..However,I managed to live  a fairly normal life. That is until the dizziness commenced.

My GPsurgery diagnosed a viral infection in the inner ear.It went on and on and on. It did not clear up.

I had my Pacemaker checked. That seemed OK.Next my GP felt it could be connected to my Prostate issue and Tamusulosin was tried. That seemed to make my dizziness worse.oxybutynin came next and that seemed to contro; my frequent bathroom trips but not the dizziness. A relatively new treatment was tried and I am currently on this which is Cialis 5mg daily. The dizziness is now so bad I cannot function at all, I am in despair.

This morning I researched my Glaucoma drops. Trusopt and Ganfort. It is reported that they can have this side effect and also may be responsible for initiating my Sick Sinus Syndrome.

Has anyone with  a gift for detection any idea what is going on.? I have never been so ill and feel I am not going to get better without a miracle.Help!!

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6 Replies

  • Posted

    Many older men develop Myelodysplastic Syndrome, which causes red blood cells to malfunction. (Can also affect white blood cells, and platelets or all three.) Dizziness is the first symptom along with exhaustion and later, loss of appetite. My husband's general practice doctor misdiagnosed him with simple anemia for nearly 9 months, offering increasing doses of iron. After collapsing, unresponsive with a hemoglobin of 6.0, and hospitalized to find out the reason, a bone marrow biopsy was performed, leading to the diagnosis of Myelodisplastic Syndrome. (my-low-diss-plastic) Ask your doctor.
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  • Posted

    Thanks Sandra,

    What was the treatment for him and how did things work out



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  • Posted

    This happened 1 year ago and although he was given 1.6 years to live (no treatment, no cure) he's still doing ok. He has the worst of the 4 levels of MDS but told he was one of the 10% of patients who could qualify for a bone marrow transplant since, at 68, he is otherwise healthy. He was started on chemo which won't cure him or kill the bone marrow cancer (a type of leukemia), but for some reason seems to reduce the amount of his red blood cells that his body kills off so his hemoglobin has gone up. He no longer required blood transfusions, has not had any dizziness, has MUCH more energy, but is still fatally ill. As soon as the chemo stops working, which it always does in MDS, he will have the bone marrow transplant. Docs give him a 50/50 chance of surviving it. Most people don't have this severe aggressive kind of MDS and can live years with supportive care and periodic transfusions.
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  • Posted

    I have been suffering from glaucoma for long time.

    I am using cosopt, which contains trusopt and have used ganfort in past.

    Fortunately i did not get any side effects.

    Cialis is used for EDF and can give you low BP. 

    This may be cause of dizziness. 

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  • Posted

    Thanks Ramesh. My dizziness may well be caused by low BP. The problem is I don't know which,if any of my meds is causing it.Cialis 5mg daily is a new treatment for BPH and my GP has suggested I try it. The result was very severe vertigo. The room was actually spinning. So it seems that yet another treatment has failed to help.

    As I mentioned in my first post,I take a variety of meds.My fear is/was that there is a negative interaction going on which causes dizziness and frequent trips to the bathroom.Sorry I'm no nearer a solution.

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  • Posted

    Try squeezing the bridge of the nose after applying the drops,I squeeze using a handerchief. Isuffered with very bad dizzyness .this was the cure. My eye drops are Latana prost.
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