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I have a very complex and unique medical condition

Posted , 2 users are following.

lisa24871
lisa24871

It is very difficult to describe my condition as part of it was due to a severe medical accident, as they called it. I have had many tumours over my body removed including spinal, throat, brain, breast adreanal gland. I have Neurofibromatosis type 1 and sadly lost my identical twin sister from the rarer cancerous side of things, this disease can bring to a rare few. I’ve seen posts on here of people that help filling in forms. A man named Steve has come up a few times. Please could someone help me 

1 like, 4 replies

4 Replies

  • ptolemy
    ptolemy lisa24871

    Posted

    I am not sure what you are asking. What forms are you talking about and for what? 
    • ptolemy
      ptolemy lisa24871

      Posted

      Have you talked to the Citizens’ Advice Bureau?
    • lisa24871
      lisa24871 ptolemy

      Posted

      No, they are snowed under, I am currently in support group contributionary group not income related from 2016, no timescale was given when to reapply, my condition will not get any better. I didn’t fill my pip in due to family crisis. All my health conditions have caused my depression and anxiety, I don’t know when Esa will be reassessed and I think about taking my own life at times as the pain is unbearable in my head, neck and shoulders and the lymphoedema makes my leg so swollen and hard. Can any one help with form news about Esa. From pip point of view, as I have had a brain tumour and no longer drive, I cannot get to places I do not know on my own without someone partly due to nervousness but the pain plays a part and as I am not familiar with the set up,I need loo. I cannot swallow very well due to tumour in throat either. 
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