I have an appointment at the hospital tomorrow they think I have Peutz Jeghers Syndrome
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I'm really worried. I had biops taken afew weeks ago and they have sent a letter saying they think it could be pjs. I want to make sure I get screened for every type of cancer that I am at risk for. I'd like to hear from anyone else that has been through the process. Thanks x
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Otherwise_Happy Jasmin123
Posted
I hope you got good news and found out you don't have PJS. I did not know what it was until I looked it up after getting your post. If you do have it, I pray that you will have the strengh and support to be as healthy and as happy as you can be.
I will be traveling to the Mayo Clinic in Dec. for another muscle biopsy amoung other tests to try to find out, for sure this time, what type of muscular dystrophy I do or do not have. I am terrified that we will be going into debt, yet again, and still have no answers as to why I continue to loose muscle function, feel so sick, and hurt so badly. Though we've never met I will keep you in my prayers and kindly ask that you do me as well.
Thank you,
Nancy from the Northeastern US.
erika90744 Jasmin123
Posted