I have an appointment at the hospital tomorrow they think I have Peutz Jeghers Syndrome

Posted , 3 users are following.

I'm really worried. I had biops taken afew weeks ago and they have sent a letter saying they think it could be pjs. I want to make sure I get screened for every type of cancer that I am at risk for.  I'd like to hear from anyone else that has been through the process.  Thanks x

 

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2 Replies

  • Posted

    Hello Jasmin123,

    I hope you got good news and found out you don't have PJS. I did not know what it was until I looked it up after getting your post. If you do have it, I pray that you will have the strengh and support to be as healthy and as happy as you can be.

    I will be traveling to the Mayo Clinic in Dec. for another muscle biopsy amoung other tests to try to find out, for sure this time, what type  of muscular dystrophy I do or do not have. I am terrified that we will be going into debt, yet again, and still have no answers as to why I continue to loose muscle function, feel so sick, and hurt so badly. Though we've never met I will keep you in my prayers and kindly ask that you do me as well.

    Thank you,

    Nancy from the Northeastern US.

  • Posted

    Did you ever figure out if you had it or not? Also how does your pigmentation look like

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