I have been dealing with this for about 3 years and its only getting worse

Tired all the time even if i get enough sleep. And its more than oh im tired i want to sleep, its like my whole body is fatigued and its telling me to stop moving and lay down you cant go on anymore. My legs feel like I am pulling lead weights on them when I am like this. I will go through episodes like this that last sometimes a week or more before I feel better. And even though my body feels like it needs a million hours of rest, most of the time, i cant. My mind will not allow me to sleep. Im good to get 4-6 hours of sleep a night. And its not solid sleep. I wake up alot. Sometimes i dont know why, but others is because my body hurts so bad in my sleep it wakes me and i have to change positions.

Daily pain from my hips down to my toes. I cannot lay on my sides or even sit leaned to one side more than a few minutes before the pain is so intense that I have to switch positions. This pain feels like a deep muscle pain that intensifies quickly. When standing I ache in my hips with deep muscle soreness in my thighs and calves along woth radiating pain down to my toes. Sometimes my legs feel very warm like there is a heater blasting them from the inside. My toes most times have a throbbing yet tingling pain to them. I have notable numbness to the skin of my left great toe and left 2ed digit. This pain from my hips down becomes so intense for periods of time that its hard for me to walk. It makes it difficult for me at work as a nurse and at home as a mom. Its hard to function.

Even though the pain and numbness and tingling is primarily in my legs on a daily basis, i still have times on and off where i feel the pain and tingling in my arms and hands. Sometimes my hands will feel like they have fallen asleep, even amidst an activity where I am using them. They have started throbbing and having shooting pains at random that I can feel to the end of my fingers. I slao have episodes where it feels like I have no control or strength in my fingertips, and I will drop things alot or have problems with picking up small things or have issues with stuff like buttons. Or during these times doing something like picking up a gallon of milk, i feel like im gonna drop it.

I feel like I have foot drop in both feet. Ive never had that looked at. But I struggle to even bring my feet into a straight position. They just kind of sag forward and look like they are drawn up in the middle. There are noticable what looks like lumps in the middle of both feet. I also have noticed my 4th digits on bilat feet are drawing up. I used to have very straight feet with straight toes.

I swell with pitting edema on occasion in ble. Sometimes it will be just localized for instance to one ankle with severe tenderness

I have almost daily headaches.

Sometimes they feel more like a sinus headache but most times they start at the base of my neck like someone is squeezing me.

I will bend my neck forward as to stretch a muscle and i can feel shooting pain that goes from the base of my skull down my back, i would say to about the middle of my shoulder blades.

I have periodic and spontaneous pain in my finger joints and elbows for no reason.

I have periodic spontaneous tenderness in the muscles of my arms for no known reason.

I have episodes of facial flushing that feels like fire on my face, neck and chest. When this happens I feel very foggy and generally do not well

I feel like my memory is getting worse as well as my ability to concentrate. Its like my mind just stops on me. I will be talking and cant remember what Im trying to say or my words will come out stuttered or incorrect like i mumble them or they just come out jumbled and i have to stop and start over. I have issues listening to people. I can hear them, but my mind no matter how hard I try, will not allow me to process what they are actually saying. Its embaressing to ask people what they said 5 times in a row because I cannot comprehend. I can read a sentence over and over at times and still am not able to process what I just read.

At times I will feel hot and nauseated out of nowhere as well as feel weak and tired.

I have swollen lymph nodes in my neck. 2 behind my left ear and 1 under my right jaw.

The 2 on my neck are tender most all of the time if you touch them. Sometimes they throb and cause me to have a headache.

I have episodes of dizziness without fainting.

I have periodic back pain in lumbar, thoracic and cervical areas.

I catch myself holding my breath when awake. Its like I have difficulty allowing my body to breathe nornally wothout thought. Almost like a forced breathing.

My vision at times goes a little weird. Not really blurry but like i have film on my eyes. It comes and goes. I have had times where it stays mostly in one eye, usually my left, for most of day. My eyes are generally uncomfortable. Especially if i look left and right all the way. They actually hurt like ive strained the muscle or something. Ive mentioned this a few times to the eye dr at normal visits, but images of my eye do not show anything abnormal. I also have gotten overtime very sensitive to light. I have actually worn sunglasses indoors at work when the lights in the hall seemed to be radiating around me and causing a headache and eye soreness.

I wet the bed until i was 18 or 19. I still have problems controlling my bladder. Alot of stress and urge incontinence. There have been times where I have lost complete control of my bladder. Like one time I didnt even feel the need to pee at all, and I stood up from sitting and fully emptied my bladder all over myself. I have constipation problems and have for most of my life.

This has all made my depression and anxiety worse as all of these things have seemed to have heightened and gotten worse over the last I would say 5 years. I cant even stand loud noises or repetitive noises without feeling like I am going to snap. Things as simple as my children crying or having a tantrum sends my body into an uproar.

All of these symptoms have been present all at once, sometimes only a few at a time. Its not always the same thing everytime. Every symptom comes and goes without warning. Sometimes they are short lived sometimes they seem to drag on. Sometimes I feel generally ok and normal (those days are very few and far between). Sometimes the pain is severe and sometimes its subtle. There really is no ryhme or reason to any of it.

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