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Hi i got diagnosed with IC in 2014 but my pain and symptoms started in 2012 took them 2 years to find it as they said its hard to diagnose. I am 25 yrs old now and still really struggling with this illness i get so much pelvic pain and kidney pain and lower back pian but the pelvic pain is the worst its hurts so much . This illness has messed my life up in so many ways i cnt do the stuff i loved to and i have two boys that i cnt play with the same way i was able to before i feel ill. i am in pain 5 times out of a week in agnoy cnt hardly move my partner has to do alot of things for me and my boys he takes care of me when i am at my worst. My boys are 7 and 3 my partner is kinda like a carer for me 5 times out of a week as i am in alot of pain and cnt move around that good. I appliyed for ESA but they said i didnt get eough points and they say i am fit for work but me and my family all know and see i am not so they stpped all my money ii have had so much stress over last 2 years the docs just seem to not care and blow me off i am at my wits end and tryng to do what i can as a mother to bring money in my house to support my family but not getting the help i really need. I also cant hold my bladder do to this illness and have to change alot of times through out the day. Please i am asking for some information on what i can do as i really dont know any more i am getting depressed ovr it all and i have no doctors that want to help or listen to me Please any body if you know of any think i can do please message back to me and info big or small will really help thank you so much
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