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I have been diagnosed with P A for 9years.First time I have ever had it in my back.It us

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susan65502
susan65502

I have back pain for the first time.It usually affects my hips knees and shoulders.I have just been prescribed methotrexate after I was unable to tolerate Sulfusalazine.For the first time since I got this disease I feel that I am giving in to it.previously I have worked through it and not given in but this back pain has stopped me working and doing normal daily living stuff.How do I get my fight back?

0 likes, 6 replies

6 Replies

  • sheila65847
    sheila65847 susan65502

    Posted

    Hi Susan,

    you haven't lost your fight - you are having a flare in a new place and it's thrown you slightly. Backache affects everything we do, walking, sitting and even lying down. You are human and in acute pain, don't be so hard on yourself! Take it easy, use painkillers and any homeopathic treatment that works. Rest, warm baths, ggentle exercise. Watch a funny movie, laughter raises seretonin which counteracts pain. Mtx is a very effective drug and will help enormously, sadly I couldn't tolerate it so take Leflunomide together with Humira. Best wishes

    • susan65502
      susan65502 sheila65847

      Posted

      Thank you Sheila, I guess I just hate not being able to get on.Feel like this thing is taking over.

      Thank you again.Sue

    • mcSchiller1
      mcSchiller1 sheila65847

      Posted

      Hi Sheila,

      I was just reading your response to Susan and wondered what your reactions were to mtx? I've had some reactions but not sure it's enough to o change medicines. How do you know what reactions to be concerned about?

      Appreciate your thoughts, Christine

    • sheila65847
      sheila65847 mcSchiller1

      Posted

      Hi Christine

      I had a hepatic reaction, liver starting to fail. There was confusion between my GP & rheumatologist. Basically one thought the other should have ID'd it and vice versa. It was acted on after 8 weeks or so. I was quite poorly. That's why it is important to get your bloods checked fortnightly when starting Mtx. I was generally unwell, flu like symptoms and slurred speech - people thought I was drunk!!

    • mcSchiller1
      mcSchiller1 sheila65847

      Posted

      Wow, horrible - sorry to hear all that. Although similar, I don't think my reactions are on the same scale - however, I'm still unsure about mtx for me.  Regardless, thanks for the encouragement to keep up with bloodwork (something I'm sometimes forgetful about). Your comments have really helped. 

      Best and thanks again!

    • susan65502
      susan65502 sheila65847

      Posted

      Thank you Sheila for your comments the other day.I have now been prescribed Naproxen and Tramadol, it really seems to be working at the moment and just to have some relief from that constant pain has put me in a better frame of mind.Thank you for writing back to me, when you are feeling really low knowing someone understands just really helps.

      I have decided not to try and rush back to work and just take some time out, before when I have had flare ups I have rushed back to work probably too quickly.

      thank you again.

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