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I have been diognosed with this condition since 1986, wh...

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Guest
Guest

I have been diognosed with this condition since 1986, when i had my first bout of renal colic!!!!! due to kidney stones. I had to have an X ray, followed by an IVP X ray. This showed that i had MSK in both kidney's. Since then i have got to known pain very well!!!

I have also noted a deteriation of the period between bouts of passing stones and day to day pain in the kidney area. I wake up in the mornings feeling like I am 90.

I would not wish this condition on my worst enemy!!!

I have had numerous surgical operations to remove kidney stones that have caused blockages. I would estimate that i have passed/had removes inxs of 200 stones, thankfully they have not all been has painfull as they could of been.

[i:916e1ba302]This message was automatically imported from the original Patient Experience[/i:916e1ba302]

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    I have been diagnosed with MSK also. The problem I'm having is that doctors don't feel that it is any problem other than passing stones. I have pain constantly under my right ribcage and around to my back. The pain has also settled into my left side as well, but not as bad. The more I bend, twist, or do anything that tightens my stomach muscles for a short period of time (Like singing a couple of songs, believe it or not!) makes it ache more. It would be nice to find a doctor that understands my pain and doesn't say, "It's all in your head." or "You'll just have to live with it." I have 5 children that I need to take care of and would like to feel normal again!sad I can barely function most days, but I do have some better days than others. God Bless to anyone who deals with this horrible disease that no one seems to know much about!

    [i:59a873b836]This message was automatically imported from the original Patient Experience[/i:59a873b836]

  • Guest
    Guest

    Posted

    I also live with MSK. It is the hardest thing I have had to deal with in my life. Not only for me but for my husband and three children. when all this first happened the cases were very few and far between now it seems there is no end in sight. it is hard to get any doctor to understand. even the ones who have choosen kidneys as there only specialty to practice. for all of you suffering as badly as you have to with this unkind illness. im so sorry because you and i will have to live like this forever and it just seems like we should get a little more help and respect for what we live through everyday. for any dr. that may reed this please learn more about Medullary Sponge Kidneys and be a little more carring to the ones who are paying for your second homes in hawaii

    [i:8b334cf90c]This message was automatically imported from the original Patient Experience[/i:8b334cf90c]

  • mlong1961
    mlong1961

    Posted

    Yes i do know what you mean, my daughter has msk and is treated like a drug addict when she has to go to the er. I have been doing research and found a site on msn that is great and she has been able to talk about her struggle with this disease.

    I have made a blog too that we are hoping everyone will talk and find out that they are not alone.

    this is the site

    ****

    there you can see the site to the other one message board on msn/

    best of luck,

    My prayers for you and your family

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