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I have been dizzy for a week

Posted , 8 users are following.

iona74275
iona74275

I woke up 7 days ago with a sore left ear and hearing loss in the same ear. When I got out of bed I felt a bit dizzy and disorientated. I went to the doc the following day who referred me to ENT. They don't think that it is to do with my ear which I don't understand as my ear was sore and I felt my hearing had detiorated (results from hearing test showed my hearing was equal on both sides.) they have referred me to neurology and to have an MRI scan. They don't seem to know what it is. When I say dizziness it isn't classic dizziness. I've had that before with low blood pressure. It's almost a drunk feeling. I am absolutely fine when I am sitting down or lying down. It is just when I get up. It isn't severe to the point that I fall over but I need to guide myself through corridors holding onto walls and things. Does anyone have this symptom? The pain in my ear stopped after 4 days and my hearing feels normal now.

0 likes, 32 replies

32 Replies

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  • donna40025
    donna40025 iona74275

    Posted

    I'm with Gillian ! Vestibular expert specialist is what you need - not all ENT doctors are specialist also neurologist ! We all found out the hard way ! 
    • iona74275
      iona74275 donna40025

      Posted

      Hi Donna, I've just had a look online and it definitely seems likely that it is s vestibular problem. I spoke to my GP who was a bit taken aback by my prognosis. Do they not realise the first thing we are going to do is Google. I am on my 2nd lot of anti-sickness type medication. First was Stemetil and now Cyclizine. I don't notice much of a difference. I am back on tues so hopefully he will listen to me. What was treatment for you and has it worked?
    • donna40025
      donna40025 iona74275

      Posted

      Hi there I have BPPV and Vestibular Mirgraines (silent migraines) the BPPV basically a rocks in your head floating inside the fluids of your inner ear giving a false perception that your still moving ( spinning , vertigo) I had it for 5 months and couldn't work or leave the house much as all the secondary side effects of anxiety , confusion , photophobia , vertigo, swaying ect ect - so shopping centres were out and basically you become home bound ! It's ok you will come out of it as we all learn to live with it as long as you get the right doctors !!!!! I had the Omniax Chair in Sydney as the standard Epley did not work after the third time and just made me worse ! So I headed  close to 2000kms and they basically turned me 360 degrees upside down and side to side! It works and my dizziness has passed but I still have the silent migraines and that's my next step is to get the correct medication when needed to deal with then as they too deal with the vertigo! I can cope better now but it took a long road to get the correct doctors - grrrrrr why is this always the problem I see is the misdiagnose and we have to tell them what's going on let alone Google - I found a vestibular facebook site in aussie so where ever you are you should have one and they share and care ! Can't find one,  ours is happy to take in overseas of course ! 
  • pauline59158
    pauline59158 iona74275

    Posted

    Hello Iona,

    I have same symptoms, I was lucky my Dr new straight away what I had wrong. He prescribed Betahistine 16mg 3 time daily and Cinnarizine 1 at night. (slow release) 

    I no longer get the morning dizziness and spinning, but I'm not free of it all together. If I miss a dose, or get up too quickly, I know it.

    Wish you well

    Pauline (UK)

    • donna40025
      donna40025 pauline59158

      Posted

      Pauline do you have BPPV ? And if so did he not send you to some one to deal with it and do the Epley ? Since I've had the Omniax Chair which is way more advance to the Epley I don't have to take drugs anymore . Some only need the Epley and its all fixed!  That's only if you have BPPV! vestibulare migraines is another story as I have both ! 
  • donna40025
    donna40025 iona74275

    Posted

    Firstly has your doctor done the Hallpike manoeuvre to test if you have BPPV? Rocks in your head floating within the middle ear??? My doctor did it straight away and yep I started spinning and crying for it to stop - lasts about 20 seconds but it's scary - at least if he does that on both side you can rule out BPPV !  I was then referred to the physio that understood BPPV however the manoeuvre could not fix me (Epley ) but it was the rare case! She pushed the doctor to send me to a specialised area that deals with vertigo after the local neurologist(MRI)  told me I just had anxiety  - if it wasn't for her I would be still left in the dark ! Take control and demand a dr that specialises in Vertigo and Vestibular diseases !  GP Doctors are jack of all trades experts in non! They have a handbook that they can look at , should be able to look at that refers these kind of specialised near by! Sorry if I'm overloading information but information that might save you months of anxiety and stress! I also am aware of people that only had it for a few weeks and we don't see them too often on this site , just us poor beggars trying to deal with it smile stay strong and stay firm ! I want , I want! 
  • Mary_McAvoy
    Mary_McAvoy iona74275

    Posted

    Hi Iona. I started with similar symptoms back in April. I was treated for an ear infection till July by both regular docs and an ENT. In July  my ENT finally ordered a CT scan and found a cyst behind my eardrum. I had it removed and he been struggling with the rest ever since. You can follow my journey through the cholesteotoma link. My advice is that you don't stop pushing and questioning. If your gut tells you they don't know what they're doing, then they probably don't. Don't worry if you have to go through multiple doctors to get answers or even to get the same answer but different treatment. Everyone here is so supportive. Good luck. 
    • gillian76726
      gillian76726 Mary_McAvoy

      Posted

      you both are talking about Tinnitus.  lOts,of,us with this problem have it as well,as the dizziness. I actually had the tinnitus a few years before the vestibular,problem,,somi guess t,s all connected.  I have tinnitus 24/7!
    • Mary_McAvoy
      Mary_McAvoy gillian76726

      Posted

      I have it 24/7 also. I am being fitted for hearing aids next week and supposedly that will help. I am hoping. 
    • gillian76726
      gillian76726 Mary_McAvoy

      Posted

      Let,us know how that goes. I am not deaf enough for hearing aids so don,t think I,ll be able,to get one.
    • lisa08672
      lisa08672 Mary_McAvoy

      Posted

      Hi,my ex mother in law has had tinnitus for a year then she got given hearing aids and after 6 months she has got rid of it so no more sleeping next to a loud ticking clock to drown the noises out,might not work for everyone but it did for her and she hasn't got hearing issues,lisa
    • Mary_McAvoy
      Mary_McAvoy gillian76726

      Posted

      I will. We haven't decided whether to start with just one or go for both at the same time. I am worried that 2 will be overwhelming. I have had significant hearing in my right ear since my teens due to a ruptured eardrum. I was able to compensate by having a good left ear and lip reading. After months of problems with my left ear, I bought an As Seen On TV hearing amplifier which helped but is crap for quality. I can't wait to try the real deal. 
  • iona74275
    iona74275

    Posted

    I now have constant ringing in my ears that won't go away! 😁
    • lisa08672
      lisa08672 iona74275

      Posted

      Hi Iona,how long have you had the ringing?I had that for 3 days non stop and sometimes on and off now but mine mostly comes when I'm stressing over my dizziness or if I have a cold,I started hearing a bleeping noise like a alarm clock then a dull buzzing sound,it kept me awake so I ended up leaving TV on all night to drown out the noise, lisa
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