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  3. Trigeminal Neuralgia

I have been just been told i will have TN forever..

Posted , 8 users are following.

tanee2
tanee2

I wondered if anyone had tips on how not to get depressed. Ultimatley im getting angry or impatient with people because i look normal no oje understands the intense pain.

Are there any tricks i can do when the pain comes on full effect to stop it/ relieve it?

So far I use plastic cutlery, drink out of straws and wrap a scarf around my face. Im taking 400mg of neaurotin x3 a day and then x2 20mg of amitriptyline.. When the pain is bad i take an exta 100mg of neaurotin as and when i need it.

My teeth are so sensitive they have constant pins and needles, to touch them makes my eyes water if a fork comes close. I can only chew on one side as if i try to use the other i bite right into my lip and have a nasty cut, which annoyingly unlike my actual lip i can actually feel. When I clean my teeth i kind of cry and moan as it hurts so much..

Any pain relief tips???

Thank you in advance x

0 likes, 19 replies

19 Replies

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  • kjack107
    kjack107 tanee2

    Posted

    Hi tanee2

    I have had TN for a 5 years and when I first tried tegretol it made me really sick so the doctor put me on the controlled released

    tegretol. I have been kind of managing the pain until this year

    and az the pain is increasing the pain specialist is introducing

    lyrica.

    I use a heated throw rug at night- either laying on it on placing

    over my face as I find that the cold at night is terrible and if the

    gets to much its too hard to manage the day....

    Its such an awful condition to have... My Dad had it too.

    • tanee2
      tanee2 kjack107

      Posted

      I am taking tegretol 100mg with 600mg neaurotin together 3x every 6 hours .. I'm still in pain all the time and an Aircon or fan can bring on a full on kind of puns and needles sharpe attach.. but the sickness is getting a little more manageable ..

      How do you find lyrica I couldn't get through lyricia as I was just throwing it up ... ?

    • kjack107
      kjack107 tanee2

      Posted

      I take 400mg of tegretol ( controlled release) in the morning and 600mg at night. The maximum I take of it is 1200 in one day...

      I have just started again on the lyrica. I had tried it a few years back (100 mg per day I think) but it made me cry a lot, dizzy, confused and I lost my memory and ability to walk straight.. It was terrible.. The pain specialist I have seen this week wants me to try it again at a low dose- 25mg at night.. I'm very nervous but I'll see.. I'm on holidays for another week so if I go nuts at least I'll be nuts at home!

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