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I have been prescribed prednisolone EC 5mg for sarcoidos...

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Guest
Guest

I have been prescribed prednisolone EC 5mg for sarcoidosis of the skin, the consultant said a 6 week course of 30mg a day for 14 days, 20mg a day for 14 days then 10mg a day for 14 days wasn't long enough to cause weight gain or bone thinning but from the first day I have had palpitations and wondered if they were caused by the prednisolone, I now see that other people have had them too so don't feel so worried. I have also noticed an increase of energy, in fact I was dancing last night which will help my current endevours to lose rather than gain weight!:magic:

[i:8490ad5122]This message was automatically imported from the original Patient Experience[/i:8490ad5122]

0 likes, 3 replies

3 Replies

  • Guest
    Guest

    Posted

    Hi

    I have had sarcoidosis for 3 years now. It affected my lungs initially and may have spread to my kidneys. I have been on up to 40mg of pred when Ive been ill and unfortunately I have never been through the stage that it gave me extra energy. Quite the opposite in fact and because I was on it for a long period, I gained 90 lbs in weight. Its very hard to shift, but Ive lost a bit now Ive weaned myself down to 5mg. One thing i noticed is the doc saying go down from 30mg to 20mg then 10mg in two week stages. It may not have adverse effects if your on it for a short period, but my doc told me to go from 30 to 20 to 10 with just one week in between. I felt awful and went very weak and thought I was dying. I then looked it up and found that you have to wean off this dreaded drug very slowly. like I said if your on it short time, maybe you will get the good effects but I can assure you that you want to get off it as soon as you can because in all cases ive looked at. long term on prednisolone is very bad for you. I know it stops the inflammation, but thats all. The side effects are horrendous and long term effect on your bones and joints is extremely painful. I recently went for a bone scan and am awaiting the results. I long for the day, if ever, I can say goodbye to this drug which although saved my life, has made my quality of life very very poor.

  • Tessa
    Tessa

    Posted

    Hi

    Whenever I reduce Prednisolone, I have to do it by half a mg a month, really slowly and have not had any problems doing it that way.

    Tessa

  • Mark_K
    Mark_K

    Posted

    I've been diagnosed with sarcoid, was bad enough for me to not be able to walk or move my arms properly in March. I got splinter hemorrhages, dry eyes, joint pain, sensitive skin, fatigue, night sweats, muscle cramps. well.. lots of stuff. Now symptoms have reduced to joint pain, fatigue, muscle cramps and the odd splinter hemorrhage. The Depo-Medrone made me feel very manic (like bashing my head against a wall), depressed, then I'd get so tired, I'd have to sleep (this was during the day). This lasted for 2 weeks, and then the pain came back.

    Now after a bad experience of Depo-Medrone I'm not sure I want to take prednisolone.

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