I have been suffering with lower abdomen pain what can I do?

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I have been for ultrasounds and cystoscopy's and nothing is showing up on either. I have reoccuring water infections and no antibiotics is not helping. I have sent several urine samples in to my GP and always coming back normal but the pain is still persisting. Help anyone. What do I have??

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  • Posted

    Endometriosis doesn't show up on any ultrasound and rarely in an MRI.

    Here's my story, I hope it helps:

    I'm Tracy, 39 and have been trying to get pregnant.

    I had my right ovary removed in 2004 because it was engulfed in scar tissue. This was because ten years earlier, I had a cyst with a fertilized egg in it, in the wall of my ovary and it blew up like a grenade. I had two kids after that, though. Hours after my second baby was born in 2000, I had my tubes tied.

    In 2013 I had major surgery to repair my one remaining fallopian tube so I can get pregnant again.

    In December of 2014, on ovulation day, I started having excruciatingly sharp pain in the area of my only ovary, on the left side. The pain shot into the tip of my hip bone and radiated along the top of my pelvic bone, down the back and ended at my tail bone area. It also shot down my thigh on the same side. I went to the ER many times and all they saw were two small ovarian cysts. I've had recurring ovarian cysts since puberty.

    This pain caused me to basically become bed ridden. About two months later, a horrible burning pain started and this was in addition to the already severely sharp pain I was experiencing. This burning pain caused the hip bone pain to radiate down the front of my pelvic bone and ended in my pubic bone. So, now my pain was all along the top of my pelvic bowl, on the left side, from my pubic bone to my tail bone.

    After being pawned off from Dr to Dr, I finally found the most wonderful OBGYN surgeon. She was worried and did another ultrasound. One of my cysts had all of a sudden gone from being one inch to the size of a lemon. In the ultrasound, it looked like it was a hemorrhagic cyst. But, with the severity of my pain, my surgeon was worried my ovary was possibly twisted and dying. So, she got me into surgery the very next day. This was now three months after the pain started, March 3rd.

    She went in laparoscopically and found a little bit of a lot of things. The cyst was fibrous, caused by endometriosis. My fallopian tube was stuck by adhesions to my bowel. There was a bit of endometriosis on the right and left side of my uterus, but luckily not inside it. On my bowel, there was some scarring and a little endometriosis. Along with all that, my one remaining tube that was repaired in 2013, had been blocked by scar tissue.

    My amazing surgeon gently removed the cyst, scar tissue/adhesions, endometriosis, and unblocked my tube. She cured my pain, she's my hero!

    One reason why I wanted to post all of this is to let you know that it's possible to actually get rid of the pain and save your reproductive organs so you can still get pregnant. If course, there are different circumstances for some, but not for all.

    VERY IMPORTANT:

    My surgeon was specially trained to remove ovarian cysts THE CORRECT WAY, with little to no damage to the ovary. Apparently, in medical school they're taught to just rip the cyst from the ovary wall, which will cause damage, scarring. My surgeon went to additional schooling, to be trained as a specialist, to gently tease cysts away from the ovarian wall and preserve the egg reserve as much as possible. It takes a long time to do such delicate work, but if you still want kids it's definitely worth it!

    One other thing I want to mention is, each month when an egg is developing in the ovary, it develops inside a cyst. But, at that point it's called a follicle. Once you've ovulated, the follicle is then called a cyst. They typically go away on their own. I've had them linger a little, sometimes for months, since I started puberty.

    Anyway, my first period since my surgery started a couple days ago. For the first time, I'm feeling cramps the way normal women do. I am having some ovary pain, but that's normal this soon after surgery. Also, my period is heavier than I've ever had, insanely heavy. But, that's normal after this surgery as well.

    I hope this info helps put your mind at ease and educates you a little about what you may be going through. There's hope! I personally recommend the laparoscopic surgery, but only if you find a surgeon who specializes in this sort of thing, one who's had additional training in making sure they're as careful and gentle as humanly possible. Laparoscopic will cause far less internal scarring than major surgery. I read that something like 80% of people will have internal scarring after major surgery. That's why, no matter what kind of surgery you have, you need to be extra careful about not using your abdominal muscles for about 6-8 weeks. If you need to cough, sneeze, vomit, etc, make sure you have a pillow you can press on your belly to prevent any major abdominal movement. That can help prevent adhesions like I had.

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    • Posted

      Hi thanks a lot for the reply, I am 21 and been having this problem for close to 2 years now. I have never been pregnant and I also have the nexoplanon implant, It is effecting my life because I cannot leave the house without worrying whether I will wet myself or not and the constant pain.
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    • Posted

      I'm so sorry Sarah, I feel for you.

      Please, find an obgyn surgeon who specializes in ovarian cysts and endometriosis removal. Have them do a diagnostic laparoscopy procedure.

      I found that only a surgeon will understand. The regular OBs are seemingly afraid of recommending surgery. Besides, laparoscopy is minimally invasive.

      You could have endometriosis on your bladder or bladder muscles. I had it on my intestines, so it can be anywhere. I'm not saying that's what you have, but nobody's going to know for sure until someone goes in and looks.

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    • Posted

      Thank you for getting back to me, I will get a second opinion on this and see what results I get. I recently went for a urodynamics test and that even came back clear. I get painful bloating and sudden urges to pee during the night and lost a lot of sleep over this.
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    • Posted

      I am still a medical mystery, I have had urodynamics tests and ultrasounds and cystoscopy but nothing is giving me the answers. I cannot live like this anymore, I need help so sorry for sounding desperate but this has gone on long enough, I have no idea why the pain is constant, i alternate between the runs and constipation. I wake up in the night to have bowel movement and it is so intense its like a waterfall of water, sorry for being graffic but its the only way to describe it. Please help
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    • Posted

      Hi Sarah, I'm in same boat as u! Had every test going all clear.. Currently awaiting a laprascopy (been waiting 4 months now) I waited a year to get reffered to a Gynae! You just have to keep pushing & pushing. Hope u get a lap soon! X
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    • Posted

      Thank you so much for getting back to me and I don't see my consultant till July and I was in A&E last night till about 2am this morning with pain. Would i need to ask my GP to refer me for a laprascopy or should I sit it out and wait till july ??
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    • Posted

      I was referd for my lap by my gynae, I'm not sure if u can be directly referd for the lap by GP or if it needs to be done by gynaecologist? I would say the gynae decision, if your in a lot of pain I would try get in before July.. I hope I am seen by them as I've been suffering for 15 months already.. And stress levels are through roof! Take care. X
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    • Posted

      Hey everyone I am back and still no answers as to why I have these issues.

      I have had no period for almost 3 months now and I am really worried. I have been diagnosed with an over active bladder, I have the nexplanon implant but the clinic said that the symptoms i have has nothing to do with that. Anyone out there have the same problem 

       

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