I have CFS and it sucks!

It's very sad to hear that someone so young is having the same experience as me--and I'm way way older than you. I wish I had words of wisdom. Us older types are supposed to have that, right? I've found that people, including many of my closest friends, just don't get it. I even once wrote an email to several friends describing what it's like to live with ME/CFS. They still didn't get it. The best understanding you'll get is from people going through the same thing, like those on this forum. So keep posting here. Also, I cope with this illness by focusing on whatever I can do on a given day, and not thinking about all the things I can no longer do. That just makes me too sad. As you've maybe already learned, it's not good to push. So I do quiet things like read, listen to music, and watch movies. 

So sorry you’re stuck at home , I know how sad it can make you feel . Take heart that many many teenagers who get this condition make a full recovery. Look at your diet and get out int the sunshine when you can . Get a good naturopath to help you on this road , take care 😉

I was diagnosed at 17, however was and still am a video gamer so i always spoke to my friends online. Two big things, however harsh this is, a friend is not a friend if they do not support you through hard times. If they simply do not believe your current state and think you're just being lazy or crying, show them this https://emerge.org.au/ good for raising attention. Inform them of the diseases real name and the severity of it.

I think in events like these you begin understanding the basis of friendship and who is/is not your actual friend. Take it as a good life lesson and learning curve, find the positives in the negative. I was told that i could not go to school because i had severe fatigue, chronic diarrhea, GERD, night sweats, insomnia and was severely underweight yet i came out of Y12 with an ATAR of 96 and am currently studying a double degree in Phys and Commerce. The message i am trying to get is don't let things hold you back, remember you are the most important person here, not your friends. Focus on yourself, friends come second in my opinion.

The more you share your experience the more people understand, try many ways to explain it. Some people are ignorant and i just tend to disprove them until they get angry because i find an odd satisfaction in, it stems from me never complaining and trying to make everything out as if it is fine, so people feel as if i'm and just a sook or lazy but in the end you know what is right.

Hi Aries,

How frustrating that your friends aren't being supportive right now. It's hard when you can see them getting on as normal and you need to rest. However, not having the school pushing you to attend is a bonus. I can only imagine how boring it might feel having to rest so much when you were so active with sport before. Do you still contact your friends on social media? I know it's not the same as seeing them in real life but can keep communication open for when you can all get together again.

Beverley

That is so tough.  I am really sorry to hear about your cfs and I can definitely relate.  My daughter got cfs when she was 15.  She was unable to attend school, homeschool, read a book, use a computer, play her guitar, do kung fu.  She has just turned 17 and even though just a couple of months ago she was seriously unwell, she is now doing great.  It really does suck and it feels like it lasts forever at the time, but you WILL recover.   

I hear ya! Sometimes i wonder if they may be afraid of catching something. Heck i guess we could offer masks if they are that paranoid. I mean it is a mysterious illness and i do wonder why members in the same famiy can get it sometimes. Luckily my children are healthy so far. Best of luck. Have you tried antivirals? Ive heard they can help some if it started with an illness.