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I have cured what was supposed to be M.E - Advice re Food Allergies

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s47448
s47448

Hi have had "M.E"  for 4/5 years. Diagnosed by health professional to have all the necessary symptoms. Symptoms........fatigue/weakness, swollen lymph nodes in throat, heavy head, struggled with noise, couldn't do simple tasks like change a bed, relied on husband for most things, mentally slow, foggy,  not bed ridden but struggled with everyday life and stopped all the things I had previously enjoyed. Illness started at the age of 35 and I'm now 40.    I decided to pay for a food allergy test even though I showed no signs of stomach, bowel, bloating or allergy issues.  Result - highly intolerant to COWS MILK. I have been free of cows milk now for 6 months and for the first time in 5 years I'm back to normal which feels like a miracle as I'd resigned myself to a life a of misery and frustration.  My nutritionalist advised she has many people with M.E symptoms which turn out to be a severe food intolerance. I don't want to give any false hope but I  just had to share this information as I think there may be other people with the same issue and I wish I had found out sooner but I wasn't going to give up and rely on medical professionals with such an unknown illness I had to explore all avenues myself.

1 like, 8 replies

8 Replies

  • claire19999
    claire19999 s47448

    Posted

    If you’re housebound, which I am, how can I get a full allergy test done?
    • s47448
      s47448 claire19999

      Posted

      Hi Claire, I wouldn't want to recommend a particular company or direction however, I just google searched and checked out a few companies online that did food intolerance testing and went on the endorsements. The company I used just sent a pack out, its prick test, tiny amount of blood into a test tube, sent back in the post, got results a few days later and half an hour phone call with a registered nutritionalist which was really helpful. Not cheap but still the best money I have ever spent, cant put a price on health. I appreciate you are housebound but obviously you can get it done with the doctors but I felt Id rather get a more thorough in depth test and pay for it. Its been more of a help to me than any other medical professionals I have encountered but Im just one case and this is my findings so far.

    • claire19999
      claire19999 s47448

      Posted

      THAnks ever so much. I’ll summon up the energy to spend time online after Christmas, as it takes it out of me. Very encouraging and food for thought (if you’ll excuse the pun 😀 )

  • catherine41708
    catherine41708 s47448

    Posted

    Thank you for posting and I am so happy to hear about your recovery.  My daughter has severe ME and we have been on this journey for over a year now.  During this time I have met enough people now who have benefited from change in diet to believe it is the logical first step for anyone with ME-type symptoms to try going gluten free and dairy free (ideally with help from a dietitian).  We were reluctant to try, and so far six weeks in to a GF DF diet we have seen no improvement, and it may not work for us, but I have seen it work for others.
  • s47448
    s47448

    Posted

    I also tried to cut out different groups to no avail initially but then took a proper intolerance test I was intolerant to other foods like vanilla (randomnly) so would never haveworked it out myself. I just mentioned dairy to keep it simple as a lot of people dont realise they are intolerant. A lot of sufferers of m.e have many tests but i can only speak of my experience and i think an nhs or private intoleranc test maybe a good place to start. Just another point it took a good while until i noticed an improvement.
  • catherine41708
    catherine41708 s47448

    Posted

    Thanks, I will look into tests as that's not a path we have been along.  And we'll be patient!

    • s47448
      s47448 catherine41708

      Posted

      Good luck and hope you find some sort of relief for you daughter in the near future.
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