I have Dupuytrens contracture of both hands. Only littl...

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I have Dupuytrens contracture of both hands. Only little fingers affected. I was about to have surgery on one hand but changed my mind after reading about Needle Aponeurotomy. I did not think that such a simple 20 minute procedure could possibly work but thought, 'nothing ventured, nothing gained' so, I went to Paris and had the treatment. It is impossible to convey the bliss of having my hands back and fully functional, what a pity I am not allowed to post my before and after pictures.

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0 likes, 14 replies

14 Replies

  • Posted

    Would it be possible to have the name of the hospital in Paris and the name of the Doctor you saw and if he/she speaks English

    Thank you.

    David Lees

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  • Posted

    My husband has Dupuytren's Contracture in both hands. He is 72 and has had the condition for probably 10 - 12 years. However lately the contracture has worsened and we need to have something done about it soon. We have been told about the Paris clinic and although we live in New Zealand, are seriously considering travelling to France as needle aponeuropathy is not practised in Australia or NZ. We have been in touch with a gentleman in Australia. He recently went to Paris and is delighted with the results. He has supplied us with information about the procedure and some suitable accommodation close to the clinic. While my husband's father did not have DC, his paternal grandfather did. My husband is one of four boys, all of whom have Dupuytren's in varying degrees of contracture.

    Thank you for any information

    Anne Devereux

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  • Posted

    I have DC on both hands and am about to have surgery on one. But I would like to consider NA. Can you tell us whether you have had any side effects? Which clinic di you visit? How much did it cost?

    Sounds like we need to raise the profile of this in the UK.

    Frank Kindred

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  • Posted

    I too have started to develop DC in my right hand, I'm actually finding it quite painful and would be keen to have NA. I would be very grateful for the name of the specialist in Paris. Thank you,

    Jane Metcalf

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  • Posted

    I have dc in both hands and one foot and have herd good things about this practice. any information you could supply me with regarding timetable, location/contact and cost would be greatly welcomed. my mother has had dc in both hands, and had surgury 2 or 3 times, but not with great results. i do hope there is a light at the end of this tunnel.

    thank you.

    andrew lightfoot

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  • Posted

    I'm due to have open surgery in Aug 2006, having read a lot about this I don't fancy having it done, I'm 35 and have had DC for approx 5 years. I'd appreciate if you could give me details of where you had the NA done and how much it costs.

    Thank you,

    Dave

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  • Posted

    Any information on your current condition would be appreciated along with contact details for the Practice in France and a rough idea of cost

    Thanks in anticipation

    Allansmile

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  • Posted

    I would appreciate an update on your current condition and also contact information for the Paris surgery and if possible some indication of cost

    Thank you

    Allan

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  • Posted

    I was born in Switzerland. My family immigrated to Canada.

    I have had two surgeries on both of my hands, mainly my little finger. The Surgeries were performed @ the Kaiser Hospital in Sacramento, California. The condition is back and I need to do something about it, again. I am also developing the condition in my feet.

    I would like to have more information on the NA proceedure. Would you please supply me with the name of the clinic in France, perhaps with contact information.

    Rudy

    Rudy

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  • Posted

    I've read about this procedure in France & would very much like to have the contact details. I have DC in my right hand & notice that it is starting in my left hand as well. Many thanks, Eunice

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  • Posted

    Hi,

    I have recently started to develop DC in my right hand and would be grateful for contact information of your surgeon, the hospital and some idea of the costs involved.

    How long is it since you had the procedure and how are you now - recurrence, pain, mobility of your hand?

    Thank you,

    Paul

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  • Posted

    I feel dreadful that I have not replied to all the requests. It is unfortunate that I was not informed that my post had been accepted so I never bothered to check back.

    In reply to all of you. There are many practitioners of NA in Europe, you can find them on http://perso.wanadoo.fr/f.badois-dupuytren/html/liste.html

    Cut and paste this into your address bar.

    Cost differs depending on how much work has to be done on your hands and who you see. Lets say that the cost of getting to France will be more than the treatment cost in most cases.

    I had NA in June 2005. I needed two sessions as my contracture was quite bad. I was warned that it would return and that is the case. I am going for further NA in September. Some people are lucky and it does not return for years. With some it can return in six months.

    I used to have a lot of pain but to be honest it is minimal now.

    You can find lots of info on www.handcenter.org and, an interview with one of the USA practitioners on http://www.medscape.com/viewarticle/531578

    Once again, I apologise for not having replied earlier.

    Marjorie

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  • Posted

    I forgot to say that most doctors in France speak English very well. I saw Dr Lermusiaux at his rooms in Gagny outside Paris.

    Marjorie

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  • Posted

    My mother is very keen on treatment for Dupuytrens contracture.I would be very grateful for an address and telephone number for Dr. Lermusiaux in France.

    thankyou

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