I have found some things that have helped my LS...

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I am 33 and my inner labia has fused, and the general outline of my labia is slowly shrinking. I have minor itching at night, but no pain. It's incredibly disheartening disease to have, but I have found somethings that bring the colour and 'life' back into my labia. Castor Oil, Emu Oil, Lemongrass and Lavender essential oil. I use it every day and it has kept the fusing and general shrinking to a minimum (though it is still shrinking). I am celiac and lactose intolerant, so I make sure to stay away from those triggers, as they cause a flare up.

I have heard that using the 'Clob' steroidal cream can help in the long run (if cells turn cancerous), so I am adding that in daily as well.

I also do warm sitz baths in Borax (that's right, the laundry detergent. just PURE borax. It's amazing)

Hope that helps  [smile]

(* if you are experimenting with essential oils, do your research, you only need a small small amount. And never use it directly on your skin, that is what the castor oil and emu oil are for)

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  • Posted

    I've had LS for at least ten years.  I'm going to try the borax and those essential oils. Frankincense is one I've tried already with a base of coconut oil.  It works well, but it's great to have backups in case sensitivities develop. And alternating would probably help to avoid sensitivities....

    We both have gut issues. Mine is IBS. I find it interesting that diet is a factor in so many cases that show up here.....   

    I only use the mometasone (cortesone .1% ointment) twice a week before bed - pea-sized doses and that seems to be enough, but I don't think I have a very bad case. Who knows though....?  That's a good question for my specialist next time out. 

    I used to get a lot of redness from urine irritation. I found if I leaned forward while peeing, the urine went straight into the potty so there was no more urine induced redness below my urethra. And I pee a LOT because I drink a lot of water. Also helpful with the LS come to think of it. 

    Good luck in this journey. Love your attitude! Thanks for sharing.

     

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  • Posted

    Confused when you say never use it on your skin?
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    • Posted

      Hi Cynthia,

      It does sound like a contradiction,

      but what I mean is do not use the easential ouls of lavender or lemongrass directly on your vulva. I always mix them in with a carrier oil (Castor or Emu oil) to dilute them. As well, though the Emu oil is expensive, it is very healing and nourishing for the skin. The castor oil acts like a lubricant and keep the labia moist.

      I'm not a medical professional at all, but I have used and done my fair share of research. Hope that helps.

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    • Posted

      Thanks, Jill. I get it now. How much of these oils, do u use? Maybe just a few drops? Also, how much Borax do u use?   Thx. so much!
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    • Posted

      I started off small, as it initially had a warming sensation on my vulva (not painful at all, just warming) it felt like it was increasing circulation or something because the colour came back to my labia and it looked a healthy red/pink colour.

      from another post on this forum, i found that for about 1 tbsps of both Castor Oil and Emu Oil ( thats 2 in total, about 30 ml) i would start with 5 drops of lemongrass and 5 drops of lavender. but again, please do more research (search for these specifics and lichen sclerosus and you'll find that original post)

      As for borax, in a quarter of a tub of warm-hot water, I use about 1/2 c of borax. The harm eith borax is if you breath it in, so just he mindful. I use the 20 Mule brand found in the laundry detergent aisle.

      Hope that helpssmile

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    • Posted

      I think you have a typo when you are talking about breathing in the borax. Now I'm curious cause I've been bathing in it for about 1 1/2 weeks and I have congestion in my airways. (I do have reactive airways). Could you explain; is borax harmful to inhale? Could this be why I'm congested and I do not have a cold. 

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    • Posted

      How can I keep from breathing it in if I'm bathing in it? I also clean my bathrooms with it. 

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    • Posted

      Hi Sandra,

      I am not a medical professional, nor do I have any advice regardingn your experience with Borax and respiratory issues. Sorrysad

      I was just being thorough in giving information in that bathing in it, absorbingg it unto your skin doesn't have harmful effects, but breathing it into your lungs ( and probably large amounts for a long period of time) can be harmful.

      There is an excellent article about the many uses of Borax, you should definitely look it up online.

      Again, I am just covering my bases on here because I know the moderators are keen to have proper and thorough health 'advice'. 

      Basically, I would just avoid brwathing it in while yoy pour it into your bath (if it 'floats through the air'wink, once it's in the water you won't be breathing in the particles.

      Hope that was a clear answer.

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