I have had a glomus jugulare tumour and it was exised in 1993. Not all of it has been removed but I have had radiotherapy and 11yrs on I am still on the planet.
I have found this site to be extensive in its subject and very helpful explaining some things I needed clarified even after this time.
I still suffer from nausea and vertigo as a result of my ear being taken in the operation as the tumor had covered the whole of it.
I have found that I also have had depression years later and wonder if it would be good for counselling to be available and also physiotherapy on the muscular damage that happens. I am only getting the use of my shoulder now and am still numb on the right side of my face.I realise I was very sick and maybe thats not an option but after the operation they have you relearning so many things I think an overall physio session is warranted. Exercises to do at home after.
I was only 28yrs old when it was discovered and had the honour of being one of the youngest to have this condition in the south pacific.
I have had a wonderful relationship with the Nuerosurgeon and ENT specialists that operated on me and now I have moved out of the area I was originally in they have kept an eye on me through outpatient appointments and CT Scans with an ENT specialist where I am now based.
Finally I have found I have way more headaches now then I ever did but these are stress related and have figured out a way to relax and enjoy what a blessing this life is.
Scary yes but now you move on and I really think you need to trust the people who are looking after you and pray that its all going to be ok cause in the end its their skill and gods grace that gets you through.
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