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I have had alopecia for 18 months and i am sick to death of the condition. I have been on the internet to find out information and have done the usual rounds both private and on the NHS and the bottom line is they can do nothing about it, when it is ready it will grow back. If anyone thinks they are alone, forget it. I am the third generation to get this condition, i have seen my mum spend thousands of pounds on treatments and in the end her hair grew back on its own after a period of three years. These are some of the things i am going through at the moment
(1)I have sat in work and the pain of alopecia is some times unbearable. I know what part of my hair is going to fall out next because it is like some one pouring acid on my head. This can last for up to two days. When the pain stops I know the hair will then fall out.
(2)I can not now be in a situation with large crowds just in case some one knocks my hair piece and I find it stressful.
(3)In the summer time I find it difficult because it is just like wearing a woolly hat and I am so hot all the time.
(4)I refuse to go out drinking/socialising with a large group as I am scared some-one will for a joke touch my hair piece.
(5) I never look into the mirror unless my head is covered up as it makes me feel so down and ugly as a person. I have told my husband to leave me as I am so ugly and not worth being with.
(6)I have tried to carry on as normal but it gets me really down and I do have bad days, the psychological effects is worse than the condition and unless you have had alopecia nobody will really understand.
(7) I have been treated as though i am an idiot at work, you know that woman in the corner withthe hair piece. I have infomed my boses that i may have a hair piece but i am not stupid and have taken it up with the union.
Unless you have had this condition i doubt if anyone can really understand what we fellow sufferers are going through. The bottom line is we are still decent intelligent human beings who do have feelings. When people have a laugh at my expence i just think 'Nobody knows whats round the corner for them', i didnt dream in a million years that i was going to get this. So chin up, best foot forward and live your life to the full, hair or no hair i am not going to let this or peoples comments stop me from doing what i want to do regardless of how hurtful people can be. Smile and the world smiles with you, cry and you cry alone!
[i:061d6f2f8c]This message was automatically imported from the original Patient Experience[/i:061d6f2f8c]
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