i have had fybro for a few yrs now. I take amitriptyline...
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i have had fybro for a few yrs now. I take amitriptyline for it but not sure if it does much good to be honest. I find doctors dont give you much support regarding fybro either. I feel a total fake when i go to them. I am always tired, have lack of concentration, my sorest points are on my back, hands and hips. It gets me down sometimes, not being able to do what i used to, due to the pain. I dont sleep well at night, feeling more tired when i waken in the morning. i would be very grateful to hear from anyone else who suffers with this.
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I also found that taking Claratin, available over the counter, (or as NeoClaratin on prescription) I had a reduction in the severity of the daily muscular pains. This treatment was recommended by the Fibromyalgia Association. I have continued with this for two and a half years now, but it doesn't help me with the daily tiredness, and lack of clarity of brain function.
However, I recently heard a programme on radio 4 mentioning Provigil. I have just managed to acquire some and started self-administered trials. So far it seems very sucessful. I would like this drug called Modafinil in the UK to be available as a treatment for Fibromyalgia.
The other things I ought to mention for people reading this that have Fibro... I have found drinking more water has helped enormously with shoulder and knee pain, and generally with muscle pain. I have found muscle spasm at its worst during PMS times, or to the point of paralysis when I had a hormone implant coil Mirana. As soon as it was removed month after month I got better & better. I have also found I am cows dairy sensitive, and if I eat milk products it increases the tiredness to narcoleptic proportions. If I avoid all milk & milk related products then the tiredness is unpleasant but manageable, although I cannot work currently due to tiredness, hence my looking for solutions to the problem.
I hope you find a solution if you are a Fibromyalgia sufferer. I hope that something I have been through and / or written may help you find a better quality of life. Hope always, Joy.
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I hope if you are suffering with fibro seek alternatives rather than take the drugs that GP prefer to had out since they get a monetary incentive everytime they write out a prescription.
Chika
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I've had amitriptyline and found it very harsh giving acute stomach pains to which i instantly stopped taking. I went back to the GP and the current medication is co-dydramol and ibuprofen. These do not seem to touch the pain much if at all and am due to go back to the GP for advice. I am also seeing a homeopathist who is extremely helpful even though finding an alternative is proving somewhat difficult. Fingers crossed he'll get there in the end!
The worse thing is that i'm studying at university and have just started my third year. Today was my first day back and I had to leave as was in so much pain that i felt like quitting; Simply due to brain fog, tip-of-the tongue syndrome, limited concentration, tiredness and of course intense pain, to name but a few! I'm not going to leave but am asking for help.
The best thing i have found so far is to attend a pain management clinic. You do have a number of "professionals" to help you, albeit ignorance is bliss, but more importantly the people you meet on the course are a god send and a couple of us have stayed in touch which has been enormous help when you reach the end of your tether or just need someone to talk to that understands completely. Other friends mean well but they have no real idea and i hope that they never find out either!
Another thing to admit defeat to in time, is to apply for a blue badge as walking and getting out of a car can be difficult, not to mention sheer exhaustion, and it will prove enormously helpful. I haven't managed to admit that i need one yet but am leaning towards it as the days go by!
Don't be afraid to ask for help either, if you can bear it, though admitting defeat is very difficult.
I hope that the good days outweight the bad 8)
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Hope this helps... sorry about the spelling
ladybird
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I think its caused by toxins and try only to eat fresh foods. drink plenty of water and avoid cows milk. Good luck.