1. Community
  2. Blood & Immune System
  3. Henoch-Schonlein Purpura

I have had Hsp since the last 9 months, and there seems to be no end of it.

Posted , 10 users are following.

shreesa21736
shreesa21736

I have had Hsp since the last 9 months.The first 3 months were quite painful. I had severe abdominal pain, joint pain. I was giving my AS board examinations then. I had to take steroids to relieve myself from the pain. I was hospitalized due to my gastrointestinal involvement. I was recommented to take 60 mg prednisolone for a a month and to eventually taper off the doses taking about a year to completely stop my medication, however due to high side effects i had to stop after 5 months. 

Since then i have consulted different nephrologist, rheumatologists and have been doing different bloody tests. My hands look bloody due to the injections. There seems to be no end of this. It hurts even now. Whenever i get new rashes, my body feels numb and heavy. I have quite lost the interest to do anything at all.

0 likes, 47 replies

47 Replies

Next
  • rocky31676
    rocky31676 shreesa21736

    Posted

    Do you have joint pains and swelling, especially the knees plus fatigue and loss of appetite?

     

    • shreesa21736
      shreesa21736 rocky31676

      Posted

      thats the one think that acted different. I lost 6 kg in a week while at the hospital 7 months back. Through out the 5 months period, i didn't have much weight gain, maybe a kg. I had been 49 kg before i got hsp, then i got 43 kg, now i m 48 kg, thats it.

  • arnie66
    arnie66 shreesa21736

    Posted

    Hi Shreesha, My daughter has HSP. We have tried accupuncture and she tells me that she feels much better after each session. It definitely seems to provide her pain relief for her joint pain and stomach pain. She's also on a diet of fruits,vegetables and has cut out dairy/gluten/sugar. The diet also seems to help to contain the HSP symptoms. We are trying various supplements but it's too early to say whether any of these have worked. I hope some of these suggestions work for you and hope you get better soon. 

  • marc19
    marc19 shreesa21736

    Posted

    gosh that sounds bad-- you sure it is HSP and not PAN?  I'm very sorry to hear that only thing I can think of is more specialists.  Ohio clinic or something that is too long. sad 

    • shreesa21736
      shreesa21736 marc19

      Posted

      Well the purpuras are the same as that of hsp.. at least i know that much
    • rocky31676
      rocky31676 shreesa21736

      Posted

      Actually PAN is worse, bacause then you will get lesions that affect medium-sized and small muscular arteries.
    • shreesa21736
      shreesa21736 rocky31676

      Posted

      well i just googled it and it's horrible. I dont have such rashes. It's limited to my legs and hands

  • rocky31676
    rocky31676 shreesa21736

    Posted

    Did you rheumatologist diagnose you clinically by your symptoms or something else?
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.