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I can now manage the pain by lying down and the other symptoms are improving apart from the fatigue and weight loss. I would like to hear from anyone else suffering from this condition. My GP had never heard of it so can offer no advice and my Specialists just tell me to be patient. Bed rest is fine for a while but I would like to know when I can get my life back. A blood patch has been ruled out for the moment as the pain is not so much of a problem and success cannot be guaranteed.
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