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I have had prurigo nodularis for 11 years. I have had times when it has gone completely [when i was in intensive care for 5 weeks sedated so i had no need to scratch!] but as soon as i came home it started to return. Then 2 years ago i was back in hospital with an attack of crohns, PN just as bad, with all the drugs in me. It started to go again, but you guessed it, it came back but this time much worse.
Have tried all sorts of treatment: light, creams and thalidomide, but gave up on it all. But i am now thinking of going back to hospital to give it one last try, maybe this time it might work!
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