I have had Pyoderma Gangrenosum for ten years and I can say it is very pai...
Posted , 2 users are following.
I have had pg for ten years and I can say it is very painful. I am getting morphine to try and stop the pain. Pain is the most terrible trouble about this illness since the wounds cure themselves all alone witout any help or any treatment except putting creams to avoid other infections. I hope I have been a help to some of you who will read me.
I would like if possible correspond with anyone of you who would feel like it. Thank you good luck and a lot of courage to all of you.
8)
[i:ddaef102ce]This message was automatically imported from the original Patient Experience[/i:ddaef102ce]
0 likes, 5 replies
Guest
Posted
I would like if possible correspond with anyone of you who would feel like it. Thank you good luck and a lot of courage to all of you.
8)
[i:4a3fb30ca8]This message was automatically imported from the original Patient Experience[/i:4a3fb30ca8][/quote:4a3fb30ca8] i have just been diagnosed with pg and i am 24, i am also hving test done to see if i have inflammatry bowel disiease and rhumatoid arthritis. i want to talk to sumone that has gone throught his as my doctor doesnt know much about the condition and i feel qiute alone and unknoledgeable x
yvonne_2
Posted
i have two large ones on the back of my left leg and can not walk without cruches because of the pain
Guest
Posted
Kind regards.
yvonne_2
Posted
I often wonder if this will ever go away, I hope you get some improvement soon, please keep in touch.
I am now under the Royal London but have only had one appointment I am dew to go back, but i feel over on my cruches, and dislocated and fractured my elbow so cannot walk at all now thank god for Daughters
Yvonne 2
Guest
Posted
I have had pg since June last year, was treated initially with high doses of steroids and antibiotics. it started to improve and by the end of august i thought it had almost completely healed. But the all of a sudden it came back with a vengence, it doubled in size. my doc then put me on cyclosporin.
it started to get better. but 4 weeks ago it remained static. 2 days ago more little spots appeared and have now opened up.
It first started on my calf and has now spread to below my ankle.
I am a 36 year old male. and have been perfectly healthy beforehand and have none of the associated conditions - ibd or crohns.
Has anyone tried IVIG??