Posted , 19 users are following.
For all you ladies with LS, I had stem cell treatment in Italy in September 2013, the LS has just started to come back. I had 3 months where the stem cells were kicking in, 12 months relief, and 3 months of i9t wearing off, so now I need more treatment.
The person who first applied stem cell treatment for LS is Dr Frencesco Casabona, who has his practice in Genoa. The actual procedure took 15 or so minutes, I opted for no sedation, so it was a bit painful, but I preferred it that way, and even without the sedative it was totally bearable.
The treatment cost 3,000 euros, plus flights and hotel, so it is not cheap. When you get to Genoa you see Dr Casabona, then next day you go to various places, to have blood taken, to pay for the treatment, its a lengthy process, but not too bad considering the result. Once the blood is processed and ready, you have to undress and gown up, and have the injections. They are not small needles, let me make that clear, but as I said, there are sedatives. Most women have the sedatives. Next morning its back to see Dr Casabona, then in our case we came home.
The treatment works, no doubt about it. No need for the steroid creams, or Protopic, nothing! Clob, or steroid cream, just thins the skin, and long term use is not good. Protopic is better, it doesnt thin the skin, and is made from an element in a certain soil. The cream is usually used on skin grafts, and in liquid form (I believe) for organ transplants, as it has the ability to repel, or drive back from the surface of the skin, the antibodies that attack it, which cause LS. Protopic is very expensive, my first tube was private, before NICE had approved of it, and 12 years ago it cost me £84 for 30 grammes. It was made by Fujiwasa, who invented it, but now it is made by other companies.
Protopic, is, in my opinion, as a sufferer for over 20 years, far superior to Dermovate, but as I said, less prescribed, it is expensive.
I get itching in the LS area after I have drunk or eaten certain things, chocolate, cola, citrus fruit, tap water (yes, tap water, which is cram packed with cleaning chemicals and aluminium, apart from hormones from the pill) and before I went through the change with a certain famous brand of sanitary towel, which ALWAYS caused me to itch. I think there are too many chemicals in sanitary towels, (similar to cat litter) and would advise any woman to try to buy pure cotton. I am not saying any of these things cause LS, but they certainly aggravate it. So, next question is could I have sex after stem cell treatment, well I think I coulod have, but I also have more recent severe back problems which have caused my pelvis to slip, so I wouldnt have been able to anyway. I lost a man, my mind and hope with LS, also my sex life, my pride and my femininity, or thats how it felt for a long long time. I wouldnt hesitate to say to a daughter, if I had one, go have the stem call treatment. The cost is the bummer, we need to lobby Parliament, is anyone out there in agreement?
6 likes, 61 replies