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I have had TLE for a long time and have learned to live ...

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Guest
Guest

I have had TLE for a long time and have learned to live and accept it.The deja vu the interest in strange phenomena etc.floating feelings,dreams of entities,strange sleep habits(sometimes waking up in middle of night etc.I worked as a nurse for 20 years until The "disability"started to bother me more along with depression .I pray alot and it seems to help ,I also am in to music,writing and have a family who give me support .All peole with TLE are actually Special even though some may see it as a curse ,I have come to see it as a Blessing.Im on Tegretol(carbamazapine)it helps alot I use to be hypersensitive to my environment and sufferferom spells constantly and also headaches.I guess this is something I have to live with.I do alot of research on the internet and have had abduction experiences but no one can tell me it was all in my head because my brother was with me .I dont know why this(TLE) happened to me ,maybe I am not supposed to know ,who knows?I just can play with the hand dealt to me.Hang in there all you TLE people you are "special'more then you may realize......DOC

[i:881a39fc24]This message was automatically imported from the original Patient Experience[/i:881a39fc24]

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3 Replies

  • TaniaJaye
    TaniaJaye

    Posted

    I get that floaty dreamy experience too. It's like I'm in slow motion and surrounded by colours and lights. I also hallucinate, either a ball of blue-white light moving around which I am compelled to try and catch, or of strangers in the room with me trying to intimidate and hurt me. My partner says the whole way I move and speak completely changes during this time as if I am someone else, but with aspects of me still there.

    My sleep pattern is atrocious, often insomniac, regular nightmares interspersed with the occasional fantasy dreamscape in vivid colours and varying shapes.

    I also seem to have trouble with regulating my temperature.

    It's funny you should mention music and writing. I've been writing songs and poetry since I was 9 years old and have won several awards for this. No one else in my family is musically orientated, so I'm not sure where it comes from.

  • Guest
    Guest

    Posted

    its all a bit confusing! im on keppra but it has taken a long time to steady the strange feelings. at one point i was getting terets, hallucinating and ready to take the world on one minute then sink into a hole the next. i want to come off the tablets but im scared stiff to do it! its not all bad though. im driving again and can go out on my own without my son walking me down to the pub to meet my fella. sometimes i like the feeling of not knowing. good our bad. who cares? if it happens we've got to deal with it. its tough for loved ones though who see what is happening to someone close to them. good job its not the middle ages! i'd off been burnt at the steak a long time ago. x
  • Guest
    Guest

    Posted

    I think I have TLE but I'm not sure.

    For about a month now I've been feeling \"strange\". It started when I was ill for a few days on and off. I feel like I'm having Deja Vu but it doesn't seem like it's happened before like normal deja vu, it's hard to explain. I feel light headed and hear voices, it sound stupid but it's the voice from the end of an online match on CoD4 which is weird.

    I don't know what to do about it but it seems to happen once a day or so and lasts about 30 seconds.

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