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Every day is different and it seems that every day is worse than the last. I got diagnosed with HMS a couple of years ago and at the time it was in one shoulder. It is now affecting my whole body. The pain is so bad and the brain fog and fatigue is taking over my life. I work as a support worker for young adults with disabilities and absolutely love my job but I'm afraid after having my hours lowered and responsibilities shortened, the next step is loosing my job. I have so much sickness from work with everything that I am affected by. It is now getting to the point of questioning the inevitable. Do I leave or do I wait to be told I'm not fit to fulfil my roll as a support worker due to my own disability?? I am so undecided as to which path to go down as realistically I can financially afford to not be working but yet suffering for days on end after working 1 shift.
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