I have hypothyroidism after RAI 9yrs ago but treatment refused; what do I do?

Posted , 2 users are following.

After graves disease 9 years ago I had radio iodine treatment but all subsequent blood tests showed TSH normal. Now I have goitre and thyroid eye disease but still TSH is normal. MDT meeting refused treatment for hypothyroidism. I also have myasthenia gravis for which I had a thymectomy so surgery for goitre not advised. All my hypo symptoms are severe especially fluttering and trembling sensation upon waking and throughout mornings. The only symptom I do not have is depression. Can anybody offer me any advice as to what I can do next?

0 likes, 1 reply

1 Reply

  • Posted

    Hi, I'll start with my normal first question, (for good reasons,) what country are you in my lovely? x

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.