I have just been prescribed hosphate binders
Posted , 5 users are following.
Hello, fellow kidney patients.
I have today been told that I am to be prescribed phosphate binders in an attempt to cure my pruritis.
I am at Stage 5 of CKD with a gfr of around 6 and I am not undergoing dialysis, having chosen conservative care and DNR.
Has anyone had any experience of these medicines and how they work, side effects and such.
I would be very pleased to hear anything you have to say.
0 likes, 5 replies
rick39522 bert74483
Posted
Hello Bert. I'm no doctor. Just a fellow CKD person. The decision to not even do dialysis and perhaps extend your years by another 5 to 10, is definitely a personal one. I think when I get there my decision will be the same as yours. But naturally I wish you the best. As far as the binders I have heard it is very individualized. Some get little to no side effects, other do. I understand the most common are headache and nausea (for which another medication can be given) and a feeling of bloating. If you take any medicine you always get a sheet listing possible side effects, even just blood pressure medications. But most people do not get them. So it is impossible to say your reaction. Best of luck. Keep us informed. You will find everyone here is supportive and interested in each other.
bert74483 rick39522
Posted
Thank you for your quick reply to my question and for your comforting words. I don't feel too unwell at the moment and my blood pressure seems to be under control. I had a call from my GP about the phosphate binders after I had posted here and he thinks they will help with the itching I suffer so badly.
This is a great place to find other people in the same place. Although I was diagnosed as suffering from CKD it is still very much a closed book to me -- and I really don't like the idea of trawling through web-sites in general, but this one is different, and extremely useful.
Thanks too to Marj and Runedog -- it's good to feel I am among friends.
I'll send another sitrep next week when I've been on the a while. In the meantime, God bless you all,
Bert
marj01201 bert74483
Posted
Bert,
I take a phosphorous binder called Auryxia 210 MG 3X a day). It's a phosphorus binder that also improves some forms of anemia. I take it for anemia management rather than phosphorus management.
But it causes a change in the color of my stools. It can also cause loose stools for me. But that's all I've experienced with it. Although, I think the dose I'm on is pretty low. When I read about it I find that a starting dose is often double the dose I'm taking.
Marj
Runedog bert74483
Posted
Hello Bert,
I too am at stage 5 and have refused dialysis for personal reasons. I am on the medication mentioned and have very soft stools mentioned by another writer. My eGFR is now at 4 but considering this I'm not feeling too bad.
fran32391 bert74483
Posted
I agree with Rick, if you get any bad side effects they can treat them with additional meds. I too have chosen palliative care that will allow me to receive any meds needed to keep me comfortable and a good quality of life. I've already discussed getting ritaline along with the morphine so I don't end up a drugged up zombie, I want to be alert and in control for as long as possible.