I have just had my fourth operation (FESS) removing nasa...

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I have just had my fourth operation (FESS) removing nasal polyps. I first got them about 4 years ago, i was 20 years old, looking back it may have been caused by heavy smoking, also i was diagnosed with asthma after moving to london and also became allergic to cats and pollen, they all seemed to happen at the same time. Anyhow, my first polyps were bad, i could see them if i looked up my nose and every time they have recurred they get worse. Before my last op (2 days ago) i could see them in both nostrils, for a few years now i have suffered loss of smell(which to be honest i could live with if that was the only effect!) constantly blocked nose (like concrete!)headaches, sinus pain and spent a hell of a lot of money on tissues, sore throat and gums from mouth breathing. It is also extremely embarrassing, i feel depressed a lot of the time purely because it effects every part of your life, in fact it dominates it. i have tried Sinus wars which didn't help much, none of the sprays the doctors prescribed have worked, and so i am still researching. I am about to start a salicylate (aspirin) free diet to see if that slows the growth but we'll see. It is quite nice(in a horrible way!) to hear other peoples stories because it does seem like you are they only one suffering sometimes.

Oh well, we live in hope of a cure, good luck to you all

:roll:

[i:92ef876435]This message was automatically imported from the original Patient Experience[/i:92ef876435]

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  • Posted

    I am being trialed on disprin (asprin) desensitisation at the local hospital shortly. I have had this condition for 10 years and until now, felt as though I was the only person on this planet with it. I have to say that I must have given a great boost to the tissue manufacturers, not to mention the thousands I have spent search for a cure. My doctor sent me to see a respiratory specialist and he diagnosed Samters Triad. Hence the trial. Best wishes to us all.

    [i:09b5786f37]This message was automatically imported from the original Patient Experience[/i:09b5786f37]

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  • Posted

    Hello just wondering if you can help my sister suffers from samters triad but has only just been diagnosed although she has suffered like you for yrs . we live in manchester england i have had some difficulty registering on this site i am, new to the computer world and my sister has even less knowlege than myself . so inm trying to help her out . please could you reply i no it would be a great help to her just knowing she is not alone . if you are in england she could maybe get in touch with your hospital . she at present takes alarge amount of steroids which we all no is not good regards sandra
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  • Posted

    B,

    In just four years 4 operations. That seems to be very much.

    Try natural techniques. Leave smoking if you have not. Change your lifesytle if is required. What I mean to say is don't allow your body to go through this the next time.

    Some of the natural remedies are Yoga(Breathing exercises), sinus rinse and Salicylate free diet.

    I had sinus problems since 10 years. In 2004 I was diagnosed Nasal Polyps. I had surgery. Since then I am surviving with my will power.

    Since I started doing those natural techniques some what seriously, it is helping a bit. I will try these for another six months.

    After a month I contact my doctor, he said you are doing the right thing. My nasal polyps also have shrinken a bit.

    Hope this information helps.

    Thanks,

    Srinivas

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  • Posted

    Hi there. I posted here back in Febuary. If you did not read my posting, I want to mention the natural medication I found that has stopped my polyps from growing. This is not a joke and I am certainly not trying to sell you anything. The product that I used was called \"Fungal Defence\". I found this product over 2 years ago. Up until that point I had to have 4 surgeries. I saw my ENT every three months to have some cut out in the office to delay the next surgery. I used this product for 3 months. MY POLYPS HAVE NEWVER GROWN BACK!!! I still see my doctor every three months just in case something shows up but nothing has come back. He believes that they are at bay due to the persciptions he gives me. He's not interested in this natural remedy. ( I haven't filled one of his persciptions in 2 years) My sense of smell has not returned yet but I can breath perfectly through both sides of my noise. AT MY WORST POINT, I HAD POLYPS THAT I COULD GRAB WITH MY FINGERS(QUARTER SIZE). I DON'T KNOW WHERE YOU LIVE OR WHETHER OR NOT THE PRODUCT IS AVAIABLE IN YOUR COUNTRY BUT KNOW YOU CAN BUY IT ON LINE. Please give it a try. I suffered fro 10 years with poylps. This product works. Best of all, I can sleep normally, breath normally, and have a few drinks without compound congestion.

    Best of luck. Don't wait for a cure. I tried everything to get rid of this polyp problem. Chiropractic, actupuncture, homeopatic, natural and modern medical. Keep trying.

    AA

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  • Posted

    Hi Anthony,

    I am in US. Thanks for your reply. Good that I can Fungal Defense on-line.

    As far as my polyps are concerned they are in control. The conditions of my polyps are not that bad. But my main concern is sense of smell and taste. I want to smell and taste like any other normal human being and at the same time I want to avoid my second surgery.

    I am doing Salicylate Sensitivity(Aspirin free) diet. Looks like it is working a bit.

    I will also start this Fungal Defense after talking to Doctor.

    Do you know anything to overcome this burining issue of smell and taste?

    Thanks for your reply. I would appreciate your quick response.

    Srinvias

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  • Posted

    Hia. I could have written your post 5 years ago. I also was in so much discomfort i couldnt walk up stairs because i couldnt breath. I begged my specialist to do my operation and it worked well. He made extra passages which have opened up my airways alot since. I have also been on Nasonex which works well. Oh and a dose of steroids works wonders and i sometimes get my smell back for a day or two.

    Although the pollyps have grown back and i have NO sense of smell at all. I havent had smell for a few years now. Sad sometimes, but at least i can see and hear. I have had one other polyp clearing by a different specialist which didnt work as well as the first.

    I am also seeing an allergy specialist and i have just finished an asprin desensitisation and i had 2 asprin in water on the weekend!! I cant believe it. Previously taking asprin or naprogesic i would have been in a Hospital bed on a respirator. I havent felt much change in my athsma though. I thought i could smell something on saturday, maybe it was my imagination.

    Im so amazed to see so many people here with the same problem.

    As a little tip, i have found that excersise is really good for clearing everything out, also swimming in salt water works too. Although i am not that fit, it does work.

    Best of luck finding a good specialist and getting those operations to get your polyps under control.

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  • Posted

    Just another thing. Im in the ACT Canberra.

    I'm sorry i didnt realise you had 4 operations! I must have skimmed your post. Sorry about that. After your ops, what are your meds like? Are you having prednislone (steroids), antibiotics and nasal sprays to keep the polyps at bay?

    At this time, i can breath air into my lungs through my nose, and something smells like paint stripper, im savouring it, i can smell something!!

    I am 25 and was also diagnosed at 20. I also smoked and was diagnosed with late onset athsma. Even though my mother told me i had athsma when i was younger only recently. I always wondered by my lungs were shot at the athletics carnival.

    After my first operation i accidently fell pregnant while on the pill and antibiotcs - so please as warning! Be careful!

    I get a bit sad about my smell sometimes. Its really sad when i cant smell something special like a rose or someones perfume. But then on the positive, at least i cant smell my husband! smile

    Wishing you luck this time!

    Hannah x

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  • Posted

    [quote:a5716ffdcf=\"Hannah\"]Hia. I could have written your post 5 years ago. I also was in so much discomfort i couldnt walk up stairs because i couldnt breath. I begged my specialist to do my operation and it worked well. He made extra passages which have opened up my airways alot since. I have also been on Nasonex which works well. Oh and a dose of steroids works wonders and i sometimes get my smell back for a day or two.

    Although the pollyps have grown back and i have NO sense of smell at all. I havent had smell for a few years now. Sad sometimes, but at least i can see and hear. I have had one other polyp clearing by a different specialist which didnt work as well as the first.

    I am also seeing an allergy specialist and i have just finished an asprin desensitisation and i had 2 asprin in water on the weekend!! I cant believe it. Previously taking asprin or naprogesic i would have been in a Hospital bed on a respirator. I havent felt much change in my athsma though. I thought i could smell something on saturday, maybe it was my imagination.

    Im so amazed to see so many people here with the same problem.

    As a little tip, i have found that excersise is really good for clearing everything out, also swimming in salt water works too. Although i am not that fit, it does work.

    Best of luck finding a good specialist and getting those operations to get your polyps under control.[/quote:a5716ffdcf]

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  • Posted

    Can you tell me more about your Aspirin desensitisation treatment?

    My experiences have been similar to yours-

    multiple polypectomies, nasal preventer sprays (Nasonex), lots of nasal rinses, Aspirin allergy. Prednisone tablets provide temporary relief but cause me side effects and should not be used long term.

    This week my specialist proposed Aspirin Desensitisation. He did an Aspirin challenge -under controlled conditions gave me Aspirin until I had a reaction and is now asking me to take a small amount daily with a view to increase it in a controlled manner over time and then have a maintenance dose daily.

    On this site I have read of Aspirin avoidance and Aspirin desensitisation.

    Can you share your experiences with Aspirin desensitisation?

    Mike

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  • Posted

    Try nasal douch (Nielmed Sinus Rinse) twice daily

    Is your condition worse after wine. (!)  Wine is very high in salicylates - many sufferers from repeated nasal polyps are salicylate sensitive.  Try eliminating them from your diet.  Are you sensitive to aspirin?  That is the best indicator of salicylate sensitivity.

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