I have m.e could anyone give me advice guidance on groups sites research support please I membership

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I have had M. E a while but still. Feel. Very isolated and reclusive in my world I feel I have improved somewhat but feel the need to find out what the he'll just happened to the last few years of a very blurry life I've missed and still are yet feel. Less confused and foggy

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6 Replies

  • Posted

    Hi Rachel

    Had to reply as didn't want you to feel alone but not sure if I can offer you anything concrete. What exactly would you like to know?

    Paz

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  • Posted

    The good news is you're apparently on the road to recovery if you're less confused and have improved somewhat. Just take it easy and don't push yourself. You might get more response on this forum if you asked some specific questions.
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  • Posted

    Hi Rachel,

    Not sure where you are based but, in uk

    There is the me association that are helpful with advice and research, you can google them also you can join them for a small fee.

    Ask your doctor to refer you to the nearest Cfs/me clinic. There are different ways they can help and at the one I attend, you can opt Into a service to contact others with this condition by email.

    Hope that helps

    Best wishes

    B

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    • Posted

      To the best of my knowledge, there are no ME clinics here in the UK. At least the doctores where I live have not heard of any.

      But it sounds like rachel is asking for compagny, which I can understand. There are many on line groups if you google ME, we cannot post links here.

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    • Posted

      There is an ME clinic at my local hospital, that I attend and I seem to remember other members here mentioning their local clinics, so I'm afraid that your doctors have that wrong. Not that I'm surprised, most GPs know very little about ME and the services available, and often seem to care even less....
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    • Posted

      Hi Tidsel,

      That's funny, I replied to you on Friday but its disappeared : 0 I was saying that I attend the Cfs/me clinic here in West Yorkshire. I actually went on Friday. Unfortunately the service is limited to 8 sessions, as are a lot of nhs services. It is also miles away taking me and hour and a half to get there.

      B

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