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I have Mineres Disease

Posted , 8 users are following.

Tas1
Tas1

I have felt for many long years of this Disease and would Love to talk to someone with this Disease as i feel very alone and lossed in my Quality of life with this, I have been on and off and still on Anti Deppressents since i was a teenager and always got unfairly judged as nobody new what was going on with me until 2years ago with all the Doctors and Specialists that i have seen it came up on my report thou the Doctor now i have and the one prio and still are blarza about this illness drives me crazy over my illness i am trying ever way to go so i can get stay in Employment as i have not ever been able too keep a Job cause of my illness

0 likes, 9 replies

9 Replies

  • deemogs
    deemogs Tas1

    Posted

    Don’t feel alone tas, this forum has helped me enormously, helps to know there are others with similar experiences that can put your mind at rest. Whatever job you go for declare the Ménière’s and hopefully they will be understanding. Keep checking back on here for positive feedback. Have you been prescribed betahistine? It really does help. Keep positive, hydrated and low salt and see if that helps. Good luck. 

  • glennmorr
    glennmorr Tas1

    Posted

    Tas1 - Have you been following any of the past threads on this site? There have been topics about diet and some meds that have helped others.
  • chipp
    chipp Tas1

    Posted

    I'm sorry I'm beginning to feel sad all the time an cry alot I pray an hope you get sum relief everyone on here always say just dont give up an get on disability but if you can't function you can't do it im very sick myself sometimes I don't think anyone listen I don't no how long I'm going to be off this time I'm having that 3 day ear perfusion I'm memphis tenn I have losses a lot of my hearing this tinnitus is terrible I don't rest good I have ask for sum nerve meds but I haven't received a script yet good luck I'm praying for you an your not alone let's keep intouch with one another we can support one another good luck my friend

    • Dean1946
      Dean1946 chipp

      Posted

      Chipp, certainly hope the perfusions help. I have MD in bit ears and have had several rounds of perfusions in each ear.

      They have really helped with the vertigo and hearing in right ear improved. It takes several weeks until you see improve ment, in fact you may feel worse after the perfusion for a short period of time. I see Dr Shea at the Shea clinic in Memphis. He has heled me, but md is going to be a constant problem I stay dizzy most of the time, but have adjusted to it. Hopefully your perfusion works a d you see improvement soon.

    • Tas1
      Tas1 chipp

      Posted

      I like the sound of that, I know this Illness makes you feel alone and nobody understands and you feel usless over all i would like too keep in touch with like mided people that are going through the same experience, so Thankyou for putting it out to me in kerping intouch i would love that Cheers tas
  • diane04068
    diane04068 Tas1

    Posted

    Hi Tas. I am 60 yrs of age and have this awful disease too. Believe me, you are not alone!!!! Read the past posts on this site and please do NOT give up! I fight this every day and still ride my horse and am very active. It is very easy for me to sit home and feel sorry for myself, but then the disease wins. Do lots of research on the internet, and print out some things to hand out to your friends in case you have an attack. Go see a ENT specialist and get all the help you can! This is a very good place to start. Good luck and keep fighting the fight!

     

  • mary16977
    mary16977 Tas1

    Posted

    Hi Tas,

    Don't give up, don't give in. Keep asking for answers, keep calling the docs and come here for kind words from people who know how you feel. Surround yourself with a positive life...it helps to have a positive outlook. You can do this! Compensate and accommodate....do what you can even if you can't do it all.

    Take care,

    ~Mary

  • chipp
    chipp Tas1

    Posted

    Hello I had the perfusion in my right ear I'm worse can't hear in my right ear I refuse to take steroids by mouth nothing seems to be helping I started taking the flavonoid plus for tinnitus I don't know how long it takes before I see results be as of right now I can't hear I have never experienced hearing loss but of course Dr she a says the meniers is getting worse

  • lillian44812
    lillian44812 Tas1

    Posted

    Hi Tas. I'm so glad you came to this site because a couple of weeks ago I was at the same place you are right now where you live in constant fear of having an attack. Thanks to the encouragement of folks on this forum, I realize I am not alone. I know there is no cure, but suggestions and feedback on various treatments helped me decide to try betahistine which has proven extremely helpful to me. While I won't get all the hearing back that I have lost to this disease, I have gotten some back. But I haven't had another dizzy spell since starting over 2 weeks ago. I have more energy, and I rode one of my horses for the first time in months (just short period as a test run but nevertheless rode). I feel hopeful for the first time knowing that there will come a time when this will not work and I will have to seek other alternatives. But thanks to everyone here, I hope you will find the comfort of caring people who share your concerns and are rooting for you to find the treatment that will give you peace.

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