I have pbc and all my tendons are inflamed and painful.

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Hi i have had pbc going on 15 years now and for a long time my pain was under control but about 6 months ago i started to feel pain in my tendons all on my (R) side mainy and have calcified tendons in shoulders and tennis elbow. Spur under my foot. If my husband touches me i jump in pain i have broken two ribs one by pulling weeds and the other from leaning into a table while sewing. Neck and shoulder pain hip and knee pain and and ankle pain.

Does any one else with pbc have this problem?? I also get cramps in my hands arms abdomen from ribs all the way down and in my feet all the way up my legs and into my groin. I have always got magnesium on stand by as well as salt replacements. As soon as i do any thing that is in any way repetitive i get the tendon pain and terrible cramps.

I cant take codiene because of biliary spasms and cant take anti inflammatories as they hurt my stomach /bowels.

Seeing a rheumatologist this thursday but would really love to hear from any one with any of the same problems.

I am really tired of all this pain.

Thank you.

Wilma.

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5 Replies

  • Posted

    Hi Wlima, how are you feeling now?   Have the doctors been able to offer any suggestions for pain relief?

    I'm just in the initial stages of a diagnosis after years of abnormal (gradually worsening) liver function tests😖.  A recent letter says I'm positive for AMA with M2 pattern specific to PBC do you know what this means? Like you I have joint pain, tennis elbow, abdominal cramps.  Damage to my left hip resulted in a total hip replacement in March last year...

     

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    • Posted

      Hi Kim. Thank you for your inquirey. I am really sorry to hear you have PBC. I have seen a Rhumatoid specialist and several orthopedic surgeons and they both recomend i go to a Pain clinic. It appears the pain in tendons and PBC go hand in hand and i have actually started to opt for alternative painrelief in using CBD oil. Unfortunately it is not a legal drug of choice here in Australia and i am finding a source for good regular oil that has a consistent strength very difficult to find.

      Its going on 16 years i think since my first diagnosis of PBC and fibromyalgia and to be honest for the first 10 years after being medicated with Ursofalk my pain improved dramatically and it is not till recent time now that i am under stress again that the pain has started with a vengence. I am really sorry i know both tests you mention are for PBC diagnosis but cant remember what they are and their meaning. If i want to know more information about blood tests i go to a site that has the relevant blood tests and learn about them that way. I have had several biopsies done over the years and my stage is still stage 2 which i am sure the Ursofalk is responsible for maintaining. I really hope you get some answers and i would love to hear from you more and hear how you are doing.

      Sorry i cannot be any further help.

      All the best with your health.

      Wilma

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  • Posted

    Hi Wilma, thanks for the quick reply... I will go & 'Google' the blood test results 😀

    hopefully we can catch-up soon.

    regards Kim 

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    • Posted

      AMA or antimitochondrial antibody is part of the diagnosis of PBC. When a patient has what is thought to be an autoimmune cause of liver disease, it is one of several antibodies frequently checked (including anti mitochondrial, anti smooth muscle, anti liver/kidney microsomes, and IgG levels). Basically the bloodwork was just agreeing with the diagnosis.
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