I have PMR Into my ninth year and have developed bad knees and lower leg pain
Posted , 12 users are following.
hi all.im into my ninth year of PMR .up and down on predniselone currently put up to 9mg by rheumy because of bloods but they have now gone down to ESR25/CRP15 .but i am ina ?ot of knee and lower leg pain even on short walk.i did have an accident that badly twisted both knees before xmas and am struggling ever since.am awaiting physio but did go to A&E just after xmas and they xrayed the worst knee and said there was no bone problem.my question is do any of you suffer knee and lower leg pain with PMR.I am worried that when inext see rheumy in july she may try to push me again into MTTX or other as she says she does not want me to go over. 10mg of pred.the stairs are hell but always have been.So fed up and i know i dont post much but i read posts every day and dont know what id do without them.I feel a lot of you are so much more knowledgable than me especially EILEEN .im wondering whether to up pred without teling her and see what happens.
0 likes, 8 replies
EileenH jean_b
Posted
You can't really blame everything on pred and PMR - and especially since you had an accident. You may have soft tissue damage which is actually worse than a break IMHO!! Speaking from current personal experience!!!! And long term use of pred does make ligaments and tendons delicate.
jean_b EileenH
Posted
thank you eileen.good to hear from you hope you and OH doing ok .i do think i may have soft tissue or meniscus tears in knees .but am wondering if the lower leg pain is maybe what others with PMR have experienced .the inabilty to only walk very short distance is scary .i am not expecting much from physio and i really hope they will further investigate.i have just ordered some magnesium glycinate capsules as read it helps with leg muscles .just hope it is ok to take with pred but take at a different time.whats you oppinion on up pred from 9 and not tell rheumy.thanks jeanb
EileenH jean_b
Posted
What is the lower leg pain? Like cramp when you walk? Goes away when you stop only to return when you start again? Has anyone checked you ankle blood pressure?
jean_b EileenH
Posted
yes eileen exactly .goes away momentarily when i have to stop and then returns as soon as i start to walk again.never knew about ankle blood pressure test i will mention it to the physio on my first appt.but the knee pain kicks in due to the accident i had and the knees lock and cant turn round.i probably got meniscus tears ?any thoughts on the magnesium glysinate ?contra indications that you know of ?thanks jeanb.
EileenH jean_b
Posted
Your GP needs to start with with what is called the ankle brachial index - the ratio between the arm BP and that measured at the ankle and then probably he needs to send you for vascular lab testing for peripheral vascular disease. Whether they can do much depends where and how the arteries are blocked - sometimes it is just a case of a bit more pred to reduce swelling in the arteries due to the PMR/GCA and that will improve the blood flow.
Don't know about the mag glyc but possibly worth a try.
jean_b EileenH
Posted
thanks for the expanation of ankle BP will wait n see on physio appt and will give mag glyc a try .lot of pain today knees keep locking but plodding on .
irene_88946 jean_b
Posted
The pain could be coming from your back. have u had a recent MRI? I've found adjusting my steroids up or down does help with the pain.
jean_b irene_88946
Posted
hi irene not had an MRI but i feel it all went haywire after the accident effecting both knees .i already upped pred to 9 and rheumy said not to go over 10mg . i keep thinking WHY !i see her in july and i bet if i ask her she will say because of putting me on mtx or other stuff.i think id rather up pred.thanks.