I have recently been diagnosed and given nerisone forte oily cream

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Nerisone forte helped me a good deal at first but after two weeks my periineum and anal area feel  very sore but not itchy

.My vulva is better.I m unsure whether to put it on mt perineum today.I am under a lot of strain with my sick husband.Any information or advice is welcome

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  • Posted

    Hi Mary,  Stress is a big reason for all of us to get flare ups and have problems calming things down.  I would however go back to my GP we have mostly been prescribed dermovate or clobetasol ointment NOT cream which contains things that seem to cause reactions. This is used daily at first then reduced in frequency to once or twice a week as things calm down.  It is a steroid but do not be afraid to use this.  On the first pinned post on this forum you will find details of a Webinair by Doctor Goldstein who is a specialist in this condition.  It lasts for an hour but is so worth listening to as it will explain the condition fully to you and explain the best options for treating it.  You will also need to moisturise yourself regularly.  My doctor gave me Epaderm but I also alternate this with coconut oil and will treat any tears with Manuka honey. I found a small container of coconut oil for just over £2 from a local drug store in the uk that doesn't have a pharmacy beginning with S. Sorry not sure if we can use the names as it is advertising.

    I also rinse with a pinch of bicarbonate of soda in a small spray bottle of warm water regularly so that urine is washed away from the area which makes things worse.  You have to keep the area prestine.  I have a sitzbath and will sit on that, before treating with clobetasol, with some bicarb in and soak for 15 mins while I read a book.  This softens the thick dry white skin of the lichen schlerosis and allows the clobetasol to work better. 

    We all find our own best treatments.  Good luck finding yours. 

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    • Posted

      Thank you so much for this reply Chrisy, this has cleared things up for me as well.  I was prescribed Dermovate by my dermatologist and have always used the ointment over the 15 years since I was first diagnosed with Lichen Sclerosus of the clitoris.  This time when the presciption was filled I found I'd been given cream NOT the  ointment.  I've now used the cream for four weeks and seen virtually no improvement at all, in fact the redness and soreness hasn't died down at all, it's REALLY painful all the time.  After reading this thread of the discussion I'm off to ring the Doctor's Monday and hopefully change the presciption back to the ointment.... it's always worked for me in the past!  Thank you SO much for posting.  Sometimes I feel despairing as I'm sure alot of us do who suffer from these conditions.

      Once again thank you Chrisy, hope you have a good weekend.

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  • Posted

    Just a thought if you shorten the tube in a spray bottle it will work upside down making it easier to spray with.  Moisturise every time you visit the toilet.
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  • Posted

    Stress is a big one for LS Mary.  Try to find some respite from the care for your husband, if at all possible.
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  • Posted

    Hi Mary, I was prescribed this after I was diagnosed with 'dermatitis' - this was after 6 months of not knowing what was wrong, as the others mention there are more typical treatments for LS which i didn't have. It worked really well but after a month it gave me external thrush on the areas Id been treating, very stingy as you suggest and only after being told to use it daily dos the nurse tell me it can cause thrush and to reduce usage to every other day. Whilst it worked for my condition I don't know if it's ideal for LS and I'd listen to the ladies about alternative treatment. In this case I thought id just let you know it could bf thrush as meridians oily cream can cause this after regular use. Hope you find something good for you
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  • Posted

    Hi Mary,

    Most of us have been prescribed Dermovate or the generic version, Clobetasol, a super-potent topical corticosteroid ointment. Your prescription is in a lower strength category. I looked it up. "Preparations containing 0.1% diflucortolone (Nerisone®) are potent topical steroids, and the higher strength which contains 0.3% diflucortolone (Nerisone Forte®) is classed as a very potent topical steroid."

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