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I have recently been diagnosed with Urticarial Vasculitis

Posted , 3 users are following.

brown45840
brown45840

I was recently diagnosed with Urticarial Vasculitis.

I am seeing a Dermatologist and Allergist to find out what caused it.  I am wondering if any of the  medications I am taking might have caused it; One that I have been taking for many years is a thiazides (Hyzaar) . Does anybody know of Urticarial Vasculitis drug-induced ?

0 likes, 3 replies

3 Replies

  • margaret22116
    margaret22116 brown45840

    Posted

    Well it does say on the American Vasculitis Foundation website that it van be a drug induced and mentions diuretics specifically.

    But what does your specialist say? Surely they should look at meds you are taking if they suspect tjat something has triggered this reaction.

    There are so many drugs for treating high blood pressure ...if that is why you are taking it. Why not ask for a change of meds? I currently use a diuretic for hypertension but also use Losartan. It is a very good med with little side effects.

    Also though intetested in your health history. Have you been unwell in other ways? Urticarial vasculitis can have other underlying causes.

    • brown45840
      brown45840 margaret22116

      Posted

      I am seeing a Dermatologist and Allergist. They did my health history, bloo d work and biopsy, but don't know what's causing it yet. I feel find except for all the severe itching.  I will be asking for a medication change on my next visit. Thanks!

  • paul38503
    paul38503 brown45840

    Posted

    Hi Brown,

    ?I have chronic continuous urticarial vasculitis.

    Severe intolerable itching is the worst of the symptoms.

    I am unfamiliar with cause of urticarial vasculitis.

    ?This is a rare disease.

    ?After years of suffering, very high doses of prednisolone and visiting  many specialists who had no previous experience with UV I have finally found relief.

    ?UV is an immunology department disease.

    ?My priority has been to find a substitute for prednisolone ( other than euthanasia ).

    ?My immunologist first tried Azathioprine but the side effects made it unsuitable.

    ?I also have IBS, Alopecia and I allergically react to many drugs etc.

    ?After Azathioprine my immunologist tried Mycophenolate   / Cellcept (3,000 mg per day ) which has replaced prednisolone. My life is much better now.

    Mycophenolate is an immunosuppressant.

    There are other drugs available for treating UV. It's just a matter of finding which

    one is suitable for you.

    ?Research is being done into what is the cause of UV but for my case I needed

    ?a drug to stop it & give me some quality of life rather than experiencing the insane itching. 

    Cheers,

    Paul

     

    My immunologist started treating me with   

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