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i have seizures

Posted , 3 users are following.

heather62867
heather62867

im getting frustrated because i have these seizures and when i go to hospital  all i get is tests. after that i get appointment after appointment

and referrals. but still the seizures keep going on and no solutions.

my husband has put numerous complaints in and get more appointments. 

this has gone on for quite some time.  i stopped breathing twice during the seizuires and was in hospital for 5 hours unconsious and on razapan all that time.  so i need toget this sorted as soon as i can. the parramedics that took me to hospital thought i had epelepsy but consultants assumed different

0 likes, 3 replies

3 Replies

  • dpm123
    dpm123 heather62867

    Posted

    Hi Heather.. Are they non-epileptic seizures (NESD/NEAD)?
  • dpm123
    dpm123 heather62867

    Posted

    I've been having NESD/NEAD Seizures for about 9 years..........and they are only NOW starting to be diagnosed/treated more effectively............It has been a lonnnng, slowwwww road to help......I can relate to your frustrations........ are yours non-epileptic also? have u seen a neurologist? had an EEG? been on any sizure meds yet?
  • dpm123
    dpm123 heather62867

    Posted

    I am VERY HAPPY TO REPORT that I now have a PSYCHIATRIST involved in helping in the DIAGNOSIS PROCESS.  I've agreed to allow her to implement her THEORY of what is causing my EPISODES, and she recently started me on NEW MEDICATIONS, (yes, its is only a THEORY at this stage, since she doesnt know me yet, and i only had one appointment with her, but, in 9 years, that's all i've gotten so far is THEORIES..........HOWEVER, the GOOD NEWS is she appears to be DETERMINED to help me DISCOVER the ACTUAL DIAGNOSIS & find the EFFECTIVE TREATMENT for me).............I WILL KEEP YOU ALL POSTED smile

     

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