I have Stridor or COPD why is it out of control can the Doctors have the healing methods to give
Posted , 6 users are following.
I find myself to no longer to have a normal life do to feeling the only need to breathe and not gasp for air in everyones view. This causes severe Anxiety which has threaten my near existance but going to the hospital again and again. They can only give me temporary relief send me home just as help less as being treated with methods that have no real hope that I am am not going to finally wake up from this nightmare for nearly everyday people see me trying to breathe or swallow, either ask me are you ok can I call 911 for you, Or think that I am on some kind of illegal drugs that is ktlling me, I just want to know that There is hope for people like me who don't understand why we continue to suffer right?
0 likes, 12 replies
mary53515 eric50547
Posted
Go again & tell them you want a medical evaluation & refuse to be discharged home!
eric50547 mary53515
Posted
I do not say this to be a jokester truely in 2012 when I was first seen at Simi Valley Hospital for for this breathing condition not knowing what was going on with me. As 3 Emergency Doctors were trying to figure why I was suffering so terribly to breath, I then had a stroke yelling at them with spit uncontolably coming out of my mouth trying to say help you idiots don't look at me like you had never seen this before,
For the next 2 years they did make every effort to admit me into the hospital have specialist diagnose and offer there how to fix this opinons by scoping my throat with cameras etc...
Yet a'lot of them were saying this is anxiety related and then sent me to speech therapy due to there belief this couldn't be fixed by surgery or medicines. Even after 2 years of having Stridor I can honestly tell you as each day passed I was in a constant asthma attack. They were no longer admitting me to the hospital for treatment there excuse well your oxgen levels are to high so this is telling us you will be ok. Mary and all the wonderful people who have replied to my cry for help I can honestly tell you now 3 1/2 years later out of the 149 times I had gone to the emergency room 32 of those times they admitted me the rest just sending me home with maybe 20% relief. I had gone to 2 other hospitals in the area and once again it looked like I was either a good actor or someone that was going to be with God sooner then I had lived a full life. For they looked at me like they had never seen someone who had Stridor or even what to do. This frustrated me so badly I just refused to go to the hospital or my sweet caring Dr. for I had enough of them just giving me anti anxiety med's with no hope of me ever just having 1 day of being so relaxed my breathing would be ok and I would be able to resume my professional life as a Computer tech who was great at his job made alo't of $$ and never asking our govt. for any assitance in health issues.
Thankyou for offering me your words of hope for I will tell more of me to the others who ha written to me. God bless you Mary. Eric K
josephine_30311 eric50547
Posted
Jo
eric50547 josephine_30311
Posted
jude65855 eric50547
Posted
If it's caused by anxiety alone, or even if it's caused by COPD, meditation would be helpful. No one needs to live with severe anxiety if they're prepared to do something about . You only mention this happening in the presence of others, which makes me think the cause is anxiety, because such attacks when alone wuold be much more frightening I would think.
Do you actually have a diagnosis of the cause of your breathlessness? That's the first step you need to take and if there's no physical cause you need to focus on doing something about the anxiety, which doesn't have to be a permanent state for you if you choose otherwise.
eric50547 jude65855
Posted
After reading your kind words 3 times I think you are honestly right about anxiety being the culprit here not something stuck in my throat or COPD being the primary cause.
At night when I am asleep I would sleep like a baby never taking one breath without making a noise or suffering like asthma was a curse over me, I will call my Dr tomorrow and ask who she can tell my insurance company who by the way had paid 100% of my medical bills costing over $250,000 that this is the next step of treatment someone who specializes in meditation.
Yes I have been properly diagnosed by 3 different throat Doctors that I have confirmed COPD and Stridor. Once again thankyou and may God bless your life. Eric K
jude65855 eric50547
Posted
That's great you're going to look for meditation but I don't know if a gp is the right place to look unless you have a very unusual gp: googling Mindfulness Meditation & then finding it in your area would be my choice of action. If you've meditated before you could try books: I'd recommend "Mindfulness for LIfe" by Craig Hassed & Stephen McKenzie, also Viktor Frankl"s "Man's Search for Meaning" which has a message that there's one choice no-one can take away from us, and that's the choice of how to respond to any given circumstance - coming from a Holocaust survivor who lost his entire family to the Nazi regime, I reckon he knows what he's talking about! Cognitive Behavior Therapy is good too: very practical and it's now known from neuroscience that we CAN change how our brains work - check out neuro pasticity if interested, esp "The Brain that Changes itself."
That's enough reading matter to recommend in one post - I hope you're a reader!
Take care of ourself, hey, and let this forum know how you get on with your new approach ....
terri69807 eric50547
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jude65855 terri69807
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Good on you for learning to manage it yourself: it is possible as you've described and correct breathing exercises are invaluable
eric50547 terri69807
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Go get you a lover a best friend someone who will live out there life with you never having regrets or feeling hopeless because you once had a life filled with suffering and having no confidence to just even take your dog out for a walk becuse the neighbors are talking about my health. It sounds to me your telling them under your breath let them talk I am better I feel that I can carry on a conversation never having to be asked again what I said.
May God continue to bless you please stay in touch Eric K
terri69807 jude65855
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terri69807 eric50547
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Not sure exactly what to say, uhmmm, if you read the message I just sent you Jude it explains that I can't take meds in general, not just for the COPD but for the other conditions I have. Haven't had my morning coffee yet and am not thinking too "brightly". Think you said you had had a couple of strokes, I to had two strokes last year, can't remember the medical term, but they were mini-strokes and thankfully wasn't left with any negative aftermath from them. I'm quite a bit older than you Eric, 66 and now at this age I don't really care what people think of me. Although having said that, the day before yesterday we voted in a new Prime Mininster here in Canada. I was outside the polling station and there were a lot of people. I could feel myself starting to panic a little, then remembered to get the inhaler out of my bag, have a puff and breathe. Did that and it helped. A couple of people did kind of give me a sideways glance, could have been through concern though, who knows? I am past the point in my life where I will get a lover and good friend would be great, male or female. Without sharing too much as this is supposed to be about COPD, I do have a strong faith. Some days that is all that keeps me going, put one foot in front of the other and keep on going. Good luck to you Eric. You are in my prayers.