I have suffered from extreme muscle pain for 2 years, a herniated disc and so many other symptoms.
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I am a 29 year old female and have seen GP's, spinal surgeons, rheumatologists, neurologists, chiropractors, pain specialists, the list goes on and on. I'm wondering if any one else has been having these problems because I have recently finally been diagnosed and I want to help anyone that I can! Please respond if you'd like to hear more!
1 like, 7 replies
valerie826 megan1111
Posted
Iyself was only diagnosed this past October at Johns Hopkins in Baltimore... Those drs have been my blessing or should I say my Saving Grace !!! I believe you just can go to a GP or local area drs but the cream if the crop !!! That's my opinion & it definitely assisted my path.
Smiles & Giggles,
Valerie
megan1111 valerie826
Posted
charlotte1824 megan1111
Posted
Can I ask if you only had symptoms for 2years? Only because the info I can find on carnitine deficiency says symptoms start from infancy. My probs started about 6yrs ago and I was fairly healthy before that.
Also what were ur symptoms.
Thanks
megan1111 charlotte1824
Posted
charlotte1824 megan1111
Posted
I also have a 6yr old son so I don't take any meds except cocodomal and diazepam when desperate. I have tried the anticonvulsants etc but when they started affecting my thinking I just didn't want to carry on as I didn't not want to be myself for my son and partners sake!! Did you get muscle tightness? A lot of days my muscles just seize up, I crack and click and make very odd sounds not to mention the acid feeling, like bones are leaking acid into surrounding areas, my fatigue used to be horrendous but it's not as bad these days, comes in waves. I get a fair bit of numbness and tingling, I don't know if I have 2 separate things or 1 thing but I also get a lot of facial pain and nerve pain. Do the supplements help with pain or just fatigue? Did the Dr prescribe them or do you get them from health food shops?
Thanks for the info.
valerie826 megan1111
Posted
That is Awesome ...& such a blessing. How did ur Dr decide to look for that?? So interesting. Did Dr suggestion those things to take or a nutritionist? Please tell...
Can't wait to hear about it...
Valerie826
megan1111 valerie826
Posted