I have suffered from gout for over 2 years and I'm on allinpurinol 600mg a day

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I have suffered with gout in right knee for over two years and I am on medication with the occasional flare up. Since yesterday my left knee has become very painful and swollen, and the symptoms  appear to be the same, could it be possible to have gout in this joint as well?  I have never missed taking my allinpurinol . The pain is excruciating , I have not had any trauma to the knee, Thankyou any advice, help would be gratefully received 

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  • Posted

    If the medication is still giving you occasional flare ups, then chances are that your left knee is suffering from the same type of inflammation. I'm no expert but being a gout victim since I was 14, gout can flare up anywhere even with medication. Talk to your doctor about it, he/she should be able to tell if it's gout.  An examine will determine if it's something else. Best of luck.

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  • Posted

    I certainly is possible that you're experiencing gout in the left knee. I've had it for 20 years and in the beginning, it just hit my large toe in the right foot. It progressively has worked through almost all of my toes and one ankle. Once in a while, I'll get it in the fingers. I'm not on medication as I have other conditions that prevent me from taking them. I can't even take pain medication or steroids...I just suffer for a month.

    Allopurinol is a pretty heavy duty drug. Are you being monitored for uric acid levels? Even a spike downward can trigger an attack. Would definitely seek the advice of a physician.

    Best wishes, I know how agonizing the pain is.

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    • Posted

      Thankyou, I have never been monitored since I was diagonised two years ago when I was admitted into hospital and had my knee aspirated, the doctor just double up the dose when I kept getting flare ups, which seems to have worked with my right knee. I will go to doctors on Monday all being well I can walk, and ask for a blood test.
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  • Posted

    1. How long have you been taking Allopurinol? (In theory, a preventative drug)

    2. Are you taking any drugs for symptoms - colchicine or anti-inflams?

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  • Posted

    Whatever you do DO NOT TAKE ALLOPURINOL WHILST SUFFERING GOUT PAIN IT INCREASES THE PAIN. I have had gout on and off for over 40 years so Iknow what I am talking about.
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    • Posted

      i have been told by my doctor not to stop taking it, and if I do and re start to expect a flare up 10 days later. To be honest I would be scared to stop and re start, the pain at the moment is just bearable the thought of having a big flare up scares me to death as I'm sure I now have it in other joint of the knee

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  • Posted

    These flares can effect any joint I've had it in knee /ankle /toes even my wrist, I'm on 400mg of allopurinol but I go once every month for blood test to find my level of Uric acid to know what level I'm at which should be around 300-350 to be safe, colchicine you need to take when you have a flare. Keep I eye on purine foods and drink plenty of water I have managed to not have a flare in 3 years and believe me I know what your feeling.

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    • Posted

      I'm shocked reading this that I have never had a blood test, and jhad the allinpurinol increased to 600mg. Like most gout suffers I can tell when I'm about to have attacked, but was surprised to be getting the symptoms in my other knee with being on the medication. I have put myself on a strict diet to try to protect my knees, I feel the doctors just fob me off but this time I am demanding a blood test. Can you tell me what are acceptable levels. It scares me that 800mg is max dose and I nearly there. 

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    • Posted

      Ask for the test, maybe you need to be a little more assertive. Even I had the test done, and I had it mild. I always seem to get checked because my uric acid is always a notch above normal, so keeping it low is important. Hope you get it done. Best of luck.
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  • Posted

    I've suffered from gout on and off since 1976 and it is getting progressivly more frequent. I've never gone down the allipuurinol road.  However regarding this latst posting, I can say that I get acute pain in my right patella almost as though I've been "kneecapped", especially after eating homemade muesli or a high bran cereal like Allbran. These types of cereals seem to be the only ones that trigger knee gout, and it is excruciating. I've been taking so much Ibuprofen over the last few months that my haemoblobin levels are now so low I was turned away from the the blood donor session t'other day. Ibuprofen is dangerous stuff with a host of serious side effects. Am now trying large doses (1.200mg) of Bromelain which alleviates the pain quicker than Ibuprofen but doesn't last so long. Good luck fellow sufferers. 

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    • Posted

      Hi David, I have been fortunate in having attacks only a few times in my life and I take the pills only when I feel a bit of  a tinge coming on. I take Bromelain 1000mg, and 1000mg of curcumin. I take it for about a week or until I feel the pain is gone. However, I have noticed that when I exercise my gout doesn't flare up. Do you exercise? My doctor told me to exercise and it has helped in keeping me free of horrible flare ups for about 15 years. Nowadays, I get warning signs before a big one is about to come on so I attack it before I let it get to that painful point.

      Like you I cannot eat wheat cereals, in fact I try to stay away from wheat as much as I can due to gout flare ups.  We can only hope that we don't form crsytals in our bodies if we eat the right foods but exercise I believe helps stave off gout attacks when we eat the right foods. Have a nice day.

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    • Posted

      Morning Patrathegreat,

      Yes, that's interesting. I do feel that excercise and weight control do have an effect. I don't actually exercise as such, apart from brisk walking about town whilst shoppin or actually walking into town now and then. As a 76 year old, I'm pretty active and usually run up stairs two at a time. Like you I do feel that we are our own first defences against the condition and that we all have different ways of achieving this as the disease seems to be so variable. There are sites that state that you cannot get gout from a fruit and vegetables; only meat products, when many many of us know that this is a load of tosh; ergo our wheat and or high bran problems. Talking to doctors about it is like conversing with aliens as they seem to have little understanding, and as our younger daughter said, who worked in doctors' surgery, "Dad, they are only taught, lotions and potions, constructive real life solutions are beyond them." Anyway thanks for the information, I'll try more exercise; cut a bit off the waistline; although I'm not really overweight, and try some of your curcumin.

      Lets al ltry and get our lives back; we can onlty do it ourselves cos we're the only ones who know what it's like!!!!  Sufferers of the world unite! We only have our painful toes and joints to lose! 

      David

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    • Posted

      Can you tell me what dose of allinpurinol you are on please? And if you have had this stopped and been given something else. Life is so miserable at the moment, I keep going to work even when I have a fare up as I'm sure my bosses would try to get rid of me if I h a lot of sickness due to the gout. I would willing have knee replace to to get rid of the pain but I no this isn't a option for us gout sufferers, nor is knee washouts.

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    • Posted

      Sorry ros, I've never tried allinpurinol. I know somebody who swears by it, but what put me off were the incidents in the States where people have died of anaphylactic shock even after taking it for six years or more. However, I've not seen any cases reported here in UK. I mentioned this to a local pharmacist and she said that that might be why GPs here in UK now are advised to take their patients off of it periodically.,

      David

                     

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    • Posted

      Hello, I've suffered gout on and off; seems more like on, since 1976. Doctors have given me prescriptions for all types but have nevcer offered allipurinol, and I've never requested it for reasons given in my posting earlier. Howver in 2013 i had a severe attack from early april and in Septemberr i went ot my GP in desperstion. My large toe was going from scarlet to black and then black and yellow; so much that my wife thought I would get gangrene, and thepain you will know. This time my GP put me on INDOMETACIN and OMEPRAZOLE. The Omeprazole to be taken once a day, apaprently to protectthe stomach and the INDOMETACIN once; three times daily. Now this sems to work most of the times but it doea sometimes affect my stomach and for this rrason I treat it with care. Usually the attack will fade in two dyas; which is bliss. However, becasue of r=fears for my stomach lining, I keep off of it as much as possinle and have been living off ibuprofen; in fact I've been popping thme like sweets. This has lowered my haemoglobin levels as posted earlier and now after doing two days on the GP's medicines, I'm trying to use Bromelain instead as there are no registered side efects. I take 1,000mg on an empty stomach first thing, and thne repeat at midday and again later in the evening. So far it seems to be working, but only time will tell. I do know the desperation with gout pain, it drains you, makes you feel like giving in; exhausts you. It is really amazing the amount of sites; especially American who make claims for cures, and yet when you read further on it transpires that they are as ignorant as everybody else and they look like just scams. One site claims that you can only suffer a gout attack from eating animal products and that it is actually inpossible to have a gout attack caused by any vegetable matter. Well I and thusand others know that is just not true. High bran cereals will have me in agony. If a drug compnay were to come up with a gout cure they would make a mint and could live off of it until the licence ran out. Good luck guys; cos it looks as though in the main the ladies are missing out on this one. Lucky you!

      I'll keep yopu all posted on the Bromelain idea and how it's working.

      David 

      David

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    • Posted

      Thankyou David, I didn't know that, I have arranged to see my Gp and will be asking the questions, when I started Allinporinal the Gp said it was for life, scary that people have had  anaphylactic shock 6 years down the line.

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    • Posted

      Thanks for the information, David. I took Indomethicin one time and had acute and scary shortness of breath, dizziness, visual disturbances, and, well, generally I felt like I was about to die. Called the pharmacy and they instructed me to stop taking it.

      GOing to pick up some Bromelain tomorrow. I feel like it's moving into my fingers tonight. This is doing my head in!

      You're right about the sites claiming 'cures.' All scams. The idea that animal products alone are responsible for gout is ludicrous. If I have too much wheat, I'll get a flare. 

      Keep the faith everyone.

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    • Posted

      GDU is short for Gelatin Disolving Unit, in other words, potency. Potency can vary as Bromelain is an enzyme from Pineapple.  It is sold with a GDU value and mg, such as 2500 GDU/500 Mg. 500 Mg of high potency works well for me.

      Actually there are number of suppliments such as Quercetin/Bromelain (from vegetables, plant pigment) that reduce your Uric acid levels. This is an anti oxidant,  has many other health benefits.

      I hope this helps someone.

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