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i have tn just wondering my begin in my ears

Posted , 4 users are following.

genny25800
genny25800

yes  mine  begin  in  my  ears   it  feel   like  thundering   and  lighting   then   it  goes   to   my   head   then  i   get   the   volts   of  etectrcticy   like  130   volts    it  happen   anytime   7  days  week   i  do  not  get  breaks   all  i  do  is  cry  tell  god   just     take  me  i  am  cryiing   now   i  do  know   why  god  is  doing  this  to  me   i  am good  person  i  do  not  steal  i  don't  have  affairs   i  don't  lie   prisoners   have   health  insurance  better  than  us  i  do  not  hurt  people   feeling   i  do  know   who  to  turned  to   the  neurg0logist  told  my  husband   that   want  to  jump  off   a  brige   3  times   that  how  painful   this  is    yes  i  have  carbzipne   too   they   gave   gabapentin  i  needed   to  go  the  er   the   volts  got  worse   was  in  the  hospital  for   a week  the  head   attacks  got  worse  so  kinda  afraid  to   take  carbzipine   but i  will  it  seem  everybody   has   it    it  seems   all  the  doctors   have    that   i  wish  wish   there   was  a  mircle   pill   to   help  everybodycry

2 likes, 4 replies

4 Replies

  • eddie13
    eddie13 genny25800

    Posted

    Hi genny25800,

    So sorry you are suffering. I know how outrageous the pain can be. Is carbzipine a variation of carbamazepine (my savior) ?

    My savior works as long as I maintain the proper dose which has increased over time.

    Don't give up because as soon as you have the right medication, you'll be good as new. What is happening with your neurologist? Do you have a plan?

    eddie13

    • genny25800
      genny25800 eddie13

      Posted

      no  plan  eddie   i  wish  i  had  the  money   to  have  injections   in  l.a.   calif  there  a  doctor   develop   a  something  it  is  smaller  than   a  time  it  goes   in  your   ear    right  away   the  pain  goes  awaycry
  • Glor888
    Glor888 genny25800

    Posted

    Hi Genny,

    Sorry you're in so much pain.

    Has your Dr referred you for an MRI scan? Also have you had your ears checked out too? Been to see an ENT specialist? It's always best to get these tests just to rule out any underlying problems there may be.

    Did your neurologist find anything after examining you?

    I agree with Eddie keep taking the Carbamazapine, once they settle into your blood stream you will be fine.

    Meantime get your Dr to refer you to the above. 

    Let us know how you get on. We are all here for you ok?

    Gloriana

  • justjane37
    justjane37 genny25800

    Posted

    There are many other medications to try. Have you tried a tricyclic like Amitriptyline or Nortriptyline? How about Lyrica? Or Topomax?

    Some poeple also get relief from a combination of Gabapentin and Amitriptyline.

    Don't give up. Keep searching for answers

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