I honestly don't know how to survive this right now
Posted , 16 users are following.
I was just dx today after a year of treatment for yeast uti etc. Last Thursday I started burning and all I could think was how fast I could stop it. Saw my GP Monday and she gave me the same Diflucan and said good luck. I went back today and she did a pelvic. Said yep you have AV and pretty severe inflam. She prescibed estradiol daily and prednisone for 8 days. I am burning so badly and as I read these comments I'm scared to death. Isn't there anything for the burning? Any cooling thing you can apply. I should have gotten something for anxiety , I haven't slept for almost a week. The best moment of the last week was when she put the lub in to examine me. Should I get a gyn? My husband just doesn't understand how bad this is
1 like, 48 replies
paisleygirl donna18720
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Hi Donna I have been dealing with the same thing for a bit now first a UTI with ecoli then the burning and frequent urination and bladder pressure and lower back ache of what the doctor has said is atrophy... I have started using an ice pac to help with the burning even when sleeping at night and am also finding that vitamin e oil put on the raw area has helped me immensely..I wasn't able to sleep at all with all the burning and frequent urination even throughout the night....I am also using replens which is helping me as well ...I feel for you and hope you find some relief soon
donna18720 paisleygirl
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Thank you I will try an ice pack tonight. What is replens ? Is it over the counter? I've cried all day like a two year old. I'm 62 ! I just never saw this coming. It seems like they would make SOMETHING to cool the burning !
peg30370 donna18720
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Agree the Replens should help, and also try coconut oil. Vagisil is another OTC cream that will give you temporary relief. Nothing wrong with trying an ice pack either. Be sure you're using a non soap cleanser as well, since soap will irritate and dry your tender tissue. Now that you've been diagnosed, you will start to feel better, but be patient.
donna18720 peg30370
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Thank you. It's three am and I am imagining being in this much pain forever
paisleygirl donna18720
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donna18720 paisleygirl
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beverly52803 paisleygirl
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beverly52803 donna18720
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There are other threads on this site where women have mentioned different things they have tried, prescription and non-prescription to alleviate the burning. Try looking for those. My symptoms are not extreme. At the start of menopause I did have terrible burning and inflammation that was misdiagnosed. When I was finally prescribed Flagyll (as I had requested when it first began) the raging discomfort and burning subsided. It was a non-specific infection and that was the magic pill for me. What I have now is AV, but with manageable symptoms. Coconut oil and Vit E suffice for me.
Make an appointment as soon as you can, and search through this site for other recommendations. Wishing you well.
donna18720 beverly52803
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donna18720 beverly52803
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beverly52803 donna18720
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both internal & external. put it in the fridge to solidify it enough to get it inside.
samantha1970 donna18720
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donna18720 samantha1970
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Hi I will try to see if I can find that specialist. I cannot use lidocaine I've had a major allergic reaction to it when I was having dental surgeryBut I am grateful for all the replies
susan556 donna18720
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Sue
donna18720 susan556
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Thank you for your answer and help. I'm so confused . I was on bactrim and she had me stop taking it, also had used diflacan but neither were working this time. My NP acted like treating for yeast and UTI was pointless since she said today it was AV. But the more I read here having AV doesn't mean you don't still have a UTI and can even be more prone to them.
They have not swabbed me to test for anything. And I don't use pantiliners but it sounds as if I might need something when I start the vaginal estrogen Friday.
I will try all ideas right now as I sit on an ice pack. This is crazy how I went from mild uti's and dryness to unbelievable non stop burning.
What do you think of the use of prednisone to calm down the inflamation?
I have worn only cotton underware for years. But I haven't worn any this past week I can't stand anything touching me. I am an artist and my first Fall show is in a week, I have no idea how I will get through that
I meant the second of relief I felt was when she put a cool lubricant in first before she put it the speculem. The examine itself was horribly painful
susan556 donna18720
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Donna that is so not good that they never even swabbed you, Your right of course having AV doesn't mean you don't still have a UTI and can even be more prone to them.
I was put on Vagifem pesseries for atrophy, they helped a lot but i was one of those who had to stop using them due to return of bleeding, im 65 63 when this happened and then had to go for a scan to check the lining of my womb hadnt thickened which it hadnt, so that was that, now on nothing for the dryness and have just had a bout of an UTI as well. This is when i discovered the bicarb helped, had to take two lots of antibiotics as well before it cleared.
Ive read that some women use a brand of nappy cream to ease the sorness and protect the area. Poor you like this and a first full show in a week. hopefully the vaginal estrogen will kick in before then and give you some relief and yes you will need to wear pant liners i think. buy the natracare organic ones , ill give the link if you want it. Oh i get what you meant now by the cold lubricant, yes i would imagine that did feel good as well. but the rest of it no! So painfull was my last smear test that ive avoided one ever since and being nagged by my family to go get it done! Never hurt at all in the earlier years, strange that.
So many ladies have benefited with the estrogen and no side affects, good luck with that
Sue x.
donna18720 susan556
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susan556 donna18720
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Sunflower13 susan556
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