I just can't cope anymore
Posted , 6 users are following.
Hello everyone.
My GP diagnosed me with fibromyalgia 1 month ago. I've been suffering with the symptoms since September/October 2013.
He referred me for an urgent Rheumatologist appointment to put treatment in place. The appointment request was made on 14 December. The 'urgent' appointment I was given was for the 11 February, the hospital then cancelled it 2 days later without reason.
I feel so exhausted all the time and trying to get to the bottom of my symptoms for the last 2.5 years has taken everything I had.
I have requested a change in hours a reduced hours at work. I'm hoping they will be sympathetic and agree but the industry I work in isn't the most understanding.
Honestly, I just can't keep it together anymore. I cry most days. I'm not even a shadow of who I used be. I don't feel like there is any light at the end of the tunnel. How do you cope? Can you go back to living a life?
5 likes, 8 replies
Sammig5578 ChronicGirl
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tina46759 ChronicGirl
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ChronicGirl tina46759
Posted
I don't have a union. We may have an OT but they haven't replied to my hours request yet so I don't know what they will do.
My GP has a 3 week waiting list for an appointment. It's the same situation in my whole area. It was very rare I went to the doctors before my symptoms started and I'm in complete shock that when you actually desperately need help the NHS doesn't come through. My fibro started because my old GP didn't treat a badly injured ankle correctly resulting in chronic pain.
I'm just tired of trying, tired of being tired and in pain. I guess I'll call my GP and start the process again.
Thanks again, take care x
christine26761 ChronicGirl
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kaz_40 ChronicGirl
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Boqer ChronicGirl
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its really rough this fibro, and it turns out we can't do a lot of things we used to be able to do easily. It's a case of accepting that we need to pace ourselves and some days take things REAL easy, which for most of us is a difficult thing as it means our whole life has to change. Stress also is the worst for us and only makes things worse, again it is almost unavoidable.
I was diagnosed a year ago with fibro but was never referred to anyone like a rheumatologist, then recently I moved and changed doctors, and so asked her for a referral to a rheumatologist and she turned to me and said...I can't refer you to a rheumatologist if you don't have rheumatism...and that was that. Doctors!
I hope things turn out for you.
ingrid19972 ChronicGirl
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Bee70 ChronicGirl
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You are not alone and please do NOT give up either.
Have you had CBT(Cognitive Behaviour Therapy)? This really helped me to deal with my day to day life. After suffering for over 20yrs and only being diagnosed Aug 2014......I can honestly say my 12 months have changed my life. The CBT taught me many things and it gave me my confidence back after so many years. Having bought up two sons during my pains life has definitely been a challenge with more down moments than up.
I have also since Feb 2015 been on herbal therapy and can honestly say after being so sceptical about it that it has changed my life for the better. Please message me privately if you require further info on this as if I post on this forum it goes straight to the moderator. I am 90% free from pain compared to 12 months ago and if you get a chance take a look at a look at my post from a few months ago sharing my experience with a particular herbal specialist.
Take care and sending you gentle warm hugs. xx