I just can't cope anymore

Posted , 6 users are following.

Hello everyone.

My GP diagnosed me with fibromyalgia 1 month ago. I've been suffering with the symptoms since September/October 2013.

He referred me for an urgent Rheumatologist appointment to put treatment in place. The appointment request was made on 14 December. The 'urgent' appointment I was given was for the 11 February, the hospital then cancelled it 2 days later without reason.

I feel so exhausted all the time and trying to get to the bottom of my symptoms for the last 2.5 years has taken everything I had.

I have requested a change in hours a reduced hours at work. I'm hoping they will be sympathetic and agree but the industry I work in isn't the most understanding.

Honestly, I just can't keep it together anymore. I cry most days. I'm not even a shadow of who I used be. I don't feel like there is any light at the end of the tunnel. How do you cope? Can you go back to living a life?

5 likes, 8 replies

8 Replies

  • Posted

    Hey I had to wait over a year to see someone and finally got a diagnosis last week and although I have no idea what you can do I totally sympathise with you I sure hope someone will know what you can do and I hope they help you get what you need as well gentle hugs x x 
  • Posted

    Hi I don't know if you can or will be the same again I'm hoping that I will come out of this fog of depression once I have been able to sort out work as I'm not in a position to give up completely and your right I don't think any employer sympathies . Do t give up keep returning to your GP until uou get a proper refurral and tell your doctor exactly how your feeling it's important for all your Information to be recorded especially work wise do you have a occupational health dept at work or do you belong to a uniion? Both can help you work wise and this will take some pressure of off you . I try to keep really positive and think of things in a. Do instead of the things I can no longer do as this just causes more stress. I think if you are at the point of not wanting to carry on you must go to your GP x
    • Posted

      Thank you for your reply.

      I don't have a union. We may have an OT but they haven't replied to my hours request yet so I don't know what they will do.

      My GP has a 3 week waiting list for an appointment. It's the same situation in my whole area. It was very rare I went to the doctors before my symptoms started and I'm in complete shock that when you actually desperately need help the NHS doesn't come through. My fibro started because my old GP didn't treat a badly injured ankle correctly resulting in chronic pain.

      I'm just tired of trying, tired of being tired and in pain. I guess I'll call my GP and start the process again.

      Thanks again, take care x

  • Posted

    Hiya ChronicGirl.. really feeling for you.have you been given any medication for this yet. I had fibro for 10 years before(same for most of us) a Rheumatologist diagnosed me..over 20 years ago there us jut .toooo many symptoms to this fibro my doctor was .. treating them all as seperate issues before diagnosis.then he finally referred me to a Rhumo..Im on a med called . Endep its Amitriptilyne (google it) I take 25mg before bed it does take afew months to get you on the right dose though, you can go fromfeeling like all Zombie to feeling like its not working....somepeople are on 100mg some are on 10mg.. we are all so individual its the only prescription med I take..its an old antidepressant drug they found was great for numbing chronic pain at the nerve ending stoppimg the pain from travelling throughout your body the atidepressant bit is a real bonus, we nearly all get depressed with this fibro. I do take lots of supplement tjouhh...double therecommened dose..But fibro just loves it when we stress out..it makes it sooo much more painful etc...so best not to worry too much if we can..do goigke that med it really works on both fronts and ive never ever had my dose increased either , do hope you grt the help you need ChronicGiirl...reallly feeling for you..its hard the first few years..it does get much better..mine did, be blessed, have a lovely day...chin up..try and be positive.its hard i know,you will get a lot of help and imfo on this site we all really do car for eachother and are very empathetic...😘😘
  • Posted

    Hi chronicgirl I was diagnosed in march 2014 with fibro rheumatologist diagnosed fibro. it took 10 years many tests to finally get a referal to rheumatologist. it was a relief to get a diagnoses but hate the condition itself. dr should try you on different meds to find what suits you and what doesnt. get as much help support as you can and aids to help you. see if your area runs a fibro support group. some areas offer 12 weeks free acupuncture and some areas offer hydrotherapy for so many weeks. you need to find out what you are has to offer you if anything. as for work many of us have had to give up work because of fibro. some have been sacked because of being off sick those that do work find it a struggle. employers just want you in work and working. their not bothered about your illness. just take each day as it comes get through it as best you can stress worry make our condition worse. dont focus on fibro and how it makes you feel. distract your mind with something like reading listening to music watch tele etc. paceing is important as over do it we pay the price for it. listen to what your body tells you. get as much help support as you can. the forum is great for getting advice help too. take care gentle hug
  • Posted

    Hi chronicgirl

    its really rough this fibro, and it turns out we can't do a lot of things we used to be able to do easily. It's a case of accepting that we need to pace ourselves and some days take things REAL easy, which for most of us is a difficult thing as it means our whole life has to change. Stress also is the worst for us and only makes things worse, again it is almost unavoidable.

    I was diagnosed a year ago with fibro but was never referred to anyone like a rheumatologist, then recently I moved and changed doctors, and so asked her for a referral to a rheumatologist and she turned to me and said...I can't refer you to a rheumatologist if you don't have rheumatism...and that was that. Doctors!

    I hope things turn out for you.

  • Posted

    Do you seem to get upset about the slightest thing. I always seem to be in tears even over things on the t.v very emotional 
  • Posted

    Hi ChronicGirl

    You are not alone and please do NOT give up either.  

    Have you had CBT(Cognitive Behaviour Therapy)?  This really helped me to deal with my day to day life.  After suffering for over 20yrs and only being diagnosed Aug 2014......I can honestly say my 12 months have changed my life.  The CBT taught me many things and it gave me my confidence back after so many years.  Having bought up two sons during my pains life has definitely been a challenge with more down moments than up. 

    I have also since Feb 2015 been on herbal therapy and can honestly say after being so sceptical about it that it has changed my life for the better.  Please message me privately if you require further info on this as if I post on this forum it goes straight to the moderator.  I am 90% free from pain compared to 12 months ago and if you get a chance take a look at a look at my post from a few months ago sharing my experience with a particular herbal specialist.

    Take care and sending you gentle warm hugs.  wink xx

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