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I have been living with HS since I was about 13-14 (I am now 23).
I never knew what was causing these painful boils under my belly and between my thighs, eventually spreading to my armpits. I've asked numerous doctors what was wrong with me. Am I not cleaning well enough? Is it caused from sweating? I was told by one doctor that it's just cystic acne and not to worry about it. Another said it's just clogged pores. (Technically sorry that they couldn't do anything about it.)
Other doctors just didn't know.
Until yesterday. while getting my annual, my doctor saw them on my under belly first and asked if I knew what it was. Not knowing anything about HS, I of course said no.
Then there it was, an answer.
I have seen others saying that they get remission periods, I have never had one. Unfortunately it has spread to the back of my neck and behind my ears.
I'm so happy to have an answer about what is going on in my body.
I've have done so much research in the last 12 hours.
Mine doesn't seem to be hormone, food or any other form that I have read, they're just there all the time. I do however have flare ups, where theyre all over the place and get to the size of golf balls at times.
I am almost in tears at the fact that I have an answer to what this is.
I am so glad I found a support group where others know what I am going through.
I'm looking forward to hearing from others about their journeys with this disease.
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