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Hello, new here. I have had symptoms of IBS for several years, ended up in hospital a few times. Think it might be related to having a hysterectomy which has really messed up my body and I also have pelvic adhesions.
last year symptoms got really bad, ended up in hospital when I started to haemmorage from my urethra. Turned out I have a urethral prolapse and the straining caused me to bleed.
my IBS was C but has changed to D. I had a colonoscopy, was told it was challenging because of adhesions and looping but from what they could see all was normal. Could not get down last part of colon because of looping. Given IBS diagnosis and basically it was goodbye, go away and live with he it.
now this year it has gotten so much worse. I could live with the D but it is the agonising stomach pain and contractions that scare me. I end up screaming in pain, convinced i am dying or actually wishing I was. Had to be restrained by a relative once in the bathroom to stop me throwing myself out the window.
i also get severe sweating, icy cold water dripping off me sweating and shaking uncontrollably. When the episode passes I am unable to stand or walk properly afterwards because of severe hip and back pain and stomach is a dreadful constant ache.
This is may sound weird but i always know when I am going to get an attack. My heart starts racing, I get palpitations and a feeling of dread and panic. It is like some sixth sense. I know that sounds crazy.
i am now struggling with severe depression, not just mild depression but the kind that is taking me down a path that I know there is not going to be a good outcome.
i have tried everything, lacto free, wheat free, fodmap, gluten free, probiotics, nothing has worked. Now I have reached the point where I am too scared to eat. In six weeks I have lost two stone in weight, gone from ten stone down to eight and I am still dropping. I am living on less than 700 calories a day, tin of soup, two rice crackers, one banana and a small packet of plain crisps and loads and loads of water. I eat the same everyday and the sight of a meal or food terrifies me.
i look at food and I just identify it with pain and wonder how much it will hurt me, the frustrating thing is my symptoms are still continuing. One family member even asked how I could possibly produce so much D when I am not eating. Weird thing is despite my food intake being so low and my fibre level virtually non existent when I am not having the D and pain my BM are normal and regular. Although after the D it can be a week or more before I go again.
i just don't know how long I can keep going on I am tired of being ill and confined to the house and waking up each day wondering how much pain I will be in and how many hours I will be camped out in the bathroom and lying on the floor. People are not sympathetic, oh try a bit of food it won't harm you, just try some, the pain can't be that bad, have you tried thinking positive, there is always someone worse off, you need to change your attitude, your exaggerating, you should try to do more. Heard them all and now I just cannot do this horrible IBS anymore. Doctor uninterested, don't see it as serious, gave me Spasmonal but they don't work, was on Mebeverine but they were useless. Refuse to take Imodium because if I stop the D the pain is even worse..
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