I keep feeling tired.

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Either my condition (Crohn’s) or the steroids keep me awake at night, and very sleepy throughout the day. Has anybody else had these symptoms? If so any advice would be welcome. 

Thanks 

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  • Posted

    Hello!

    I can't say that I remember steroids keeping me awake but they did make me sweat a lot at night.

    Have you tried varying the time that you take the steroids?

    If you're taking them in the evening that could be what's causing the insomnia.. 

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    • Posted

      I’m going to try different times next week but they are putting me on injections soon. However, it is the sweats that are the main thing cause me to not sleep. Thanks for the reply hope all is well. 
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  • Posted

    Yes, I have that problem. When I'm on higher doses of steroids, I am usually up and bouncing around at 3 in the morning and zonking in the afternoons!

    Nevertheless, It's well known that Crohn's by itself can make you very tired/fatigued. It may be a good idea to get your B12 or/and iron levels checked as low levels can have this effect as well. Mine are OK but I still have restless nights and sleepy days after 14 years. I blame it on Crohn's and steroids both.

    It's a horrible disease but I hope this helps a bit!

    All the best.

     

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    • Posted

      Thanks for the reply. I’m pretty much the same as yourself but it’s only been six months. The thought of being like this for years to come is a bit horrible but I’ll adapt no doubt. At least I’m not alone in the nicest possible way. Kind of makes you feel at ease. 

      Again thanks. 

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